Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Interview for Assignment due Sunday by 11:55pm

"LittleOak":
my log in is Russell
worst constantly hips and low-mid back pain/ache
have had symptoms of AS for 30 yrs.(always had believed my iritis was frequent headaches)
have begun to fuse my hips first
14 yrs. old began iritis once or more ea. month, @28 yrs. old began severe hip pain (bilateral)
Hoping this helps, Good Luck w/ your assignment!
Russ

Login Name: Kathair
What Has Caused the Most Pain: SI Joint on the right
How Long I've Had AS: I've had symptoms of AS that go back about 20 years, but was just diagnosed nine months ago when I couldn't walk
Where Fused First: I have not fused anywhere yet that they can see
How Old I Was When I First Started Getting Symptoms: I can remember having incredible pain when running in high school at 15 and problems with my hip at 17.
I hope you do well on your research paper!

Hey Oak girl,

Will help you the best I can.

What is your log in name:
Dotyisle

What has caused you the most pain:
SI (Hip) pain... mostly right hip, but also left hip at times. Was not able to sleep at times due to the pain and walking was difficult. It would take me 10-15 minutes to roll out of bed on to the floor and go to shower on hands/knees.

How long have you had AS:
1995 to present

Where did you start to fuse first:
Left SI (hip)

How old were you when you first started getting symptoms:
I was 26 years old

Hi Oak_leafgirl

What is your log in name: Taos
What has caused you the most pain: Hips then low back
How long have you had AS: 38 years
Where did you start to fuse first: SI joints then Lumbar spaine
How old were you when you first started getting symptoms: 12 years old

Good luck with assignment

Brian

What is your log in name: Dakotadan

What has caused you the most pain:

Lower back, hips, ankles

How long have you had AS:

Since birth? Diagnosed: Oct 1978 (I believe in a recent reply to a post I may have confused my diagnosis date with my SS disability date....sorry 'bout that)

Where did you start to fuse first:

Surgical fussion L-5 through L-1, 1978 -- Ribs to sternum, 1994 -- Hips starting or have other issues...have a tentitive diagnosis of Degenerative Hip Disease but my Dr. is reluctent to make it firm because of my AS history.

How old were you when you first started getting symptoms:

22 For about 7 months I had severe pain in lower back which decreased to mild but never really left.


Nice to meet you

Pete, son of John

What is your log in name: Drizzit
What has caused you the most pain: Left SI when it fused, knees
How long have you had AS: 16 years
Where did you start to fuse first: 1996 Left SI only nothing else has fused
How old were you when you first started getting symptoms: 34

Hello, Oakleaf's daughter!

I haven't been officially diagnosed with AS yet, but have been diagnosed with sacroiliitis, Primary Biliary Cirrhosis [an auto-immune liver disease], and chronic iritis. Oh yeah, I am HLA-B27+ and RF+ as well. Just extra info, if you don't need it, just toss it

What is your log in name:
Squeaky

What has caused you the most pain:
iritis and worrying about the conditions!

How long have you had AS:
first contacts with docs regarding AS, July 2006

Where did you start to fuse first:
no fusion yet, and I don't plan on it I am on a No-Starch Diet [since Sept 06] and have alleviated most of my symptoms with this diet, so am hoping I have stopped the progression therefore I shouldn't fuse.

How old were you when you first started getting symptoms:
July 2006, I was 39, and my iritis symptoms caused me to see my GP. He sent me for bloodwork, and then to a rheumy, and an opthamologist, and a gastroenterologist [sorry for any spelling errors]. Looking back over my history, I first noticed gut symptoms in my early teens [no explanation from docs], first had hip/SI joint pain late 20s, first iritis when I was 37, smouldered for almost 2 years before becoming acute, and that is when my iritis/AS internet research began and I found KickAs.

Good luck on your paper. Please give your Dad an extra hug and squeeze for me.

Cheers,
Rita

James, 12, Adrian, 10, Elisabeth, 3, my babies!

1) Jaybird
2) Hips, Neck, Shoulders
3) 8 years based on initial diagnosis
4) Neck (Apparently C3-C4, C4-C5, and now possible C5-C6)
5) 25

Hi
I hope I can help too.

What is your log in name:
JamesB

What has caused you the most pain:
Panic Disorder, back after fracturing, hips before replacements, neck after fusing.

How long have you had AS:
26 years total. The first 7 years I was dx'ed under another arthritis.

Where did you start to fuse first:
Both hips at the same time. (17 years old)

How old were you when you first started getting symptoms:
10 years old (left ankle), possibly younger if I count the years of having a 'bad back'.

Have fun on your project.
James.

What is your log in name:
Tim13

What has caused you the most pain:
Tendons in arms and wrist, SI joints, Upper neck, Lower back, eyes, and knees.

How long have you had AS:
Diagnosed for 2 years.

Where did you start to fuse first:
Upper Neck, Upper spine already curved.

How old were you when you first started getting symptoms:
35

Diagnosed with AS, RA, and Iritis/Uvitis.
2 collapsed disks.

Good luck on your paper.

Tim