Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Interview for Assignment due Sunday by 11:55pm

Hello, very nice to meet you and I hope your report does well

Login name: stevec

Most pain? Caused at the onset by sacrum and hips and later most distracting disabling pain caused by neck.

How long have I had AS? My AS was diagnosed at age 16 in 1978 after 4 years of manifesting symptoms.

Frist fusion? Hips, left hip first at or about age 17.

First symptom? Leg pains at age 12.

yes i have a wonderful caring young one and i love her a lot i hug her every time i see her and i think her doing reports on our disease is excellent...i have one request from you all on this report she is doing add all other conditions you have that is AS related ok.......oak......thanks for helping her out

Hi Again,

At Oak's request:

Quote:

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i have one request from you all on this report she is doing add all other conditions you have that is AS related

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Ok Where should I begin?


My Osteoporosis is related to AS,

My Ulcerative Colitis is related to AS and by gene HLA-B27.

My Kidney Stones are related through Osteoporosis and AS, and possibly Malnutrition too.

My Nerve Damage is related to AS.

My Vertabral Compressions are related through Osteoporosis and AS.

My Psoriasis is related to AS and by gene HLA-B27.

My Malnutrition is related to Ulcerative Colitis which is related to AS.

My Atrial Fillibration may be related to one of the following:
AS, Smoking, Long Term excessive Ibuprofen intake, other meds (side effects), and/or Malnutrition.

My Panic Disorder is related to AS through Ulcerative Colitis and Malnutrition or possibly the Long Term excessive Ibuprofen intake, and possibly dependency to a pill used to treat it. More importantly, many types of Anxiety are common among some people living with a progressed chronic autoimmune disease, so it could also be a direct relation.

I also have some memory, concentration and balance trouble that could be related somehow.

It think that covers all of the big things.
Take care,
James.

and i thought you was just naturaly clumsy like me i would say its AS related because i got it too except i fall down alot....memory is AS related due to brain fog from depression due to all the pain we are having 24/7 i think i will send my daughter an e-mail of a post i wrote at another site about my AS...thanks james.....oak

Oak_leafgirl23,
please note if you require the AS related conditions which I am diagnosed and under treatment for:
iritis/uveitis
colitis/ulcerative colitis
degenerative disc disease
depression
chronic/severe back and hip pain
sacroilitis
hip and spinal fusion
ended treatment for psoriasis (good remission!)
heart related episode (not confirmed by cardiologist)-was admitted to hospital from ER and gastroenterologist could not confirm any GI cause
nutrient deficiencies due colitis causing present "radial neuropathies"-numbness and intermittent weakness in my arms
insomnia-mostly pain related
phew ...
sounnds like alot for an old man of 43 yrs. old!
Hope the info helps!
Russ

hey russel the more info she gets the better her report will be...thankyou all and keep it comming...fussel im 43yrs old too i'll be 44 in september.....aint we all a bunch of basket cases but its great when ya see a doctor and just blast them with all the medical knowledge we have my GP says i know more then a 3rd year med student im hoping i know more than that now i know i know more the the quacks in the ER....oak

What is your log in name: heronblu
What has caused you the most pain: Spine
How long have you had AS: Probably since at least 18 y.o. Diagnosed at age 43, 22 years ago
Where did you start to fuse first: Sacroiliac
How old were you when you first started getting symptoms: about 18

Hope these help.
Lou

Oldtimer

Most pain when neck was fusing.

37 yrs.

Fused first in SI joints

First symtoms at age 20, dxed at aged 29. Back is totally fused, right hip replaced, and neck broken and healed back at 45 degree angle anfter it was fused solid. It broke like a long bone instead of a vertebrae.

J. R.

oldtimer that break sounds very painful did you get any nerve damage with that break...oak

Hello again,

Ok...more stuff...

I believe that I also have developed ulcerative colitis in the last 2 years, in which I will have a colonoscopy in dec. to confirm the diagnosis. As well, I also suffer from constant fatigue and exhaustion from lack of sleep from pain during the night that keeps me from sleeping well. I also walk with a cane when I go out because my balance is not what it used to be.

Ummm, I think that's all so far. If I think of anything else, I'll post it up for you.

All the best,

Lexus