Kickas.org Forums Treatments, Drugs and Alternatives NSD and diet-related; Reiter's syndrome origin AS anyone?

Hello!

I'm almost certain my AS is from Reiter's. Have had problems with red eyes and mild iritis since three years and last year I hade prostatitis(correct spelling?) This year in march I started having AS issues.

Is there anyone out there who also has a similar Reiter's originated AS and how have you done on the diet? Are your eyes better aswell?

Also, if AS is Reiter's originated is it still the klebsiella that's the problem?.

Also, if I have sucess with the NSD for my AS symptoms should my eyes improve aswell?

Hejsan svensken!

From your recent posts it seems you keep yourself busy thinking
Your question here is quite interesting. Myself I must confess I am confused about these different related symptom classifications AS, Reiter, RA, ...
If anyone here could clarify this, it would make me happy. What symptoms goes with what?

As you can see from my recent post here, I had my first flare of iritis some 1 or 2 weeks ago. I have been NSD for a year, only cheating a little in May-June, due to travel.
I wonder if it is possible to have a 1 month delayed reaction starch->iritis? Otherwise it seems that NSD does not help for iritis for me...

Cheers
Andreas

Howdy, Sverige:

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Is there anyone out there who also has a similar Reiter's originated AS and how have you done on the diet? Are your eyes better aswell?

Also, if AS is Reiter's originated is it still the klebsiella that's the problem?.

Also, if I have sucess with the NSD for my AS symptoms should my eyes improve aswell?

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Great and Yes:
I might have had Reiter's that exacerbated my AS (very early in my disease experience), but I definitely had AS prior to ReA (if that is what I had). DIET IS KEY and Yes, the main reason that I stick to the diet is to avoid eye trouble.

Yes:
AS can be caused by Reiter's and the germ in true Reiter's is Chlamydia trachomatis, but this germ alos affects the urinary tract and when these specific symptoms disappear, the STD is no longer active, but this germ has left lesions throughout our entire elimination systems. Subsequent to this, other germs that are more diverse and opportunistic invade these lesions and Reiter's evolves into AS within two years, in persons who are susceptible to AS. Now, it is the same germ, Klebsiella pneumoniae that is causing symptoms of AS. The main difference between AS of "normal" origin and AS due to Reiter's is that ASers who had Reiter's usually have more episodes of knee edema. This might be due to the location of the major lesions (lower in the bowel than AS or Crohn's).

Yes:
It is the same mechanism affecting the eyes in iritis as collagen tissue destruction in AS. Also, the diet will help eliminate inflammation and 'dry-eye' which makes us more susceptible to conjunctivitis and other eye problems, will decrease. It is good to take the supplemental fish oil and GLAs, also.

Best Regards,
John

Hi John!

WOW, thank you for your reply, getting rid of my iritis problems is more than I hoped for with the NSD.

I tested myself for STDs, including clamydia, about a year ago and it didn't show anything so I guess that germ is gone and I'm just left fighting the klebs then.

In the end, if my iritis goes away, I actually think getting AS was a good thing, since I wouldn't have found the diet otherwise. Ofcourse this is if I can put my AS in remission.

Say my AS is Reiter's originated, is my GIT likely to need healing in some other way or is there anything in particular I should think of? You said something about the problems being lower in the GIT?

[I've actually had some progress on the NSD, i quit my NSAIDs three weeks ago, and especially the last week my status has improved a lot. Also my eyes feel pretty ok, maybe slightly less red than they've been the last years. I guess I still have a far way to go but I'm definatly getting started.]

Janet wrote:

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I'm assuming being B27+ would be one of the factors that would make someone susceptible. Are there others? Is it possible for a B27+ person who was dx'd with Reiters to NOT develop AS?

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Yes, B27 is not the entire genetic picture, and there have been several other MHCs identified for AS that should also apply: B60, B39, B7CREG, and a very few others have been identified, but these do not make up the full 10% of non-B27s.

Honestly, I would say NO—you almost cannot avoid getting AS if you are susceptible and had Reiter’s or shigellosis, salmonellosis, giardiasis, and many other similar conditions. I suppose it is possible to get something very young, while growth hormones are quite active and the tract heals very fast (this is the reason for the onset population peak around age 20; growth hormone decreases rapidly).

Sverige wrote:

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Say my AS is Reiter's originated, is my GIT likely to need healing in some other way or is there anything in particular I should think of? You said something about the problems being lower in the GIT?

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The GIT heals once you stop taking NSAIDs and start eating the right stuff (avoiding starches which you are already doing) and take some supplements. I mentioned GLAs, but vitC, vitD from sun and cod liver oil, niacin, lysine, glycine, and vitE are each important. Foods that help heal are yoghurt (but we must be careful with amounts; yoghurt can cause a flare in too great a quantity and avoid bad additives in most commercial brands—modified food starch, rice flour, even inulin in too great amount), lychee fruit, and okra are all foods that seem to be intestine-healing. Colostrum has been reported to help also. Good to keep >11g EFAs daily. Some EV olive oil at 2 or 3 teaspoonfuls daily helps keep these EFA numbers up and is tract-friendly.

If lesions are lower in the tract, you might benefit from reading about Giraud Campbell’s regimen posted here (not so much the diet—you already have this part down, but the stories). Main thing is patience; you have already noticed some benefits of the NSD and these will continue, even more (we all hope for you) than you ever expected.

Health,
John

Hi - I am new here and still getting educated about AS.

Being someone with chronic ReA and B27+ (my sister is also and also has ReA) some of what I am reading has me very concerned, and especially since my rheumy said that it looked like there was some arthritic activity in my back after my last Xrays.

If it is true that having ReA makes you that much more susceptible to getting AS, would there be any expected timeline? I've had ReA for almost nine years and have known there may be a chance to get AS but I was hoping that after a certain point if AS didn't appear then chances are lower that it ever would. IS that true or just wishful thinking on my part?