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JanetK #310374 09/10/08 12:47 PM
Joined: Oct 2006
Posts: 2,001
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I agree with Sue. With PTs and chiros, it really depends on who you see as there are many different schools of thought and techniques out there. I'm glad you found a helpful PT.

We tried traction on my neck-cautiously. We did a very short session with very light traction the first time. I was decidedly worse the next day, so there was no second time. Within a couple of days, I was back to what my neck was prior to the traction. "Kid gloves" is definitely the way to go if you have AS or suspect AS. I shudder to think what would have happened to me if we had tried a "normal" first session of traction on me.

Karen


I cannot make the universe obey me. I cannot make other people conform to my own whims and fancies. I cannot make even my own body obey me.

Thomas Merton



Hope is the thing with feathers that perches in the soul - and sings the tunes without the words - and never stops at all.

Emily Dickinson


drizzit #310375 09/10/08 12:53 PM
Joined: Sep 2001
Posts: 849
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Joined: Sep 2001
Posts: 849
Quote:

people with AS fusion should never go to a chiro in my opinion.

Just too dangerous




AMEN to that. stay away they can do more harm than good folks with AS.

talderman #310376 09/10/08 07:58 PM
Joined: Nov 2001
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Very_Addicted_to_AS_Kickin
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Hi there and welcome!

Speaking as someone who has been in bi-weekly chiropractic care for the last 7 years, a chiropractor can make it easier to live and move, if they treat you properly and according to your body's specific needs.

My chiropractor was the healthcare professional who found my AS. She had never had a patient with AS before, but when she and the technicians looked at my x-rays, it was pretty clear that this was probably what was at the root of my physical issues. By that time, she had been treating me for 2.5 months. One month in, I started having massive muscle spasms while trying to sleep - 4 or 5 times every night the left side of my torso would spasm and lift me off the bed as I screamed in pain. As soon as my chiro found that out, she stopped manipulating my spine and started doing soft tissue work only. When they found the possible AS, the first thing she did was send me to my family doctor to be referred for testing. Then, she started doing her research. She contacted a classmate of hers who was a chiro living with AS and started asking questions and getting guidance. She immediately stopped using torque to manipulate my spine (once the spasms had died down and I was adjustable again) and started using a gizmo called an integrator, which is a spring loaded thingmee that is much more gentle. I always feel lighter when I leave, my energy is more clear and my steps more confident (depending on what kind of shape I'm in when I arrive). Only rarely do I ever feel additional pain after an adjustment, and then it only lasts a little while.

So, the answer to your question is, yes, a chiro can be an invaluable member of your healthcare team. But the chiro must be knowledgeable about AS. If the chiro isn't knowledgeable, he/she must be willing to learn. That is not negotiable.

Secondly, any adjustments must be done with an integrator, or an activator (similar gizmo to an integrator). Torque adjustments are not an option with AS; no ifs, ands or buts about it. Any chiro who tries to convince you otherwise should be avoided at all costs.

Thirdly, soft tissue work to warm up the muscles surrounding the joints must be the first thing in any treatment. Our spines are too delicate and our musculature too apt to spasm to have a treatment done without soft tissue work being performed first.

As for Enbrel will not work? ... Far too many patients with a spondyloarthropathy have regained their lives due to the biologic medications (such as Enbrel, Remicade, Humira). It happens to varying degrees for everyone, and there are exceptions, but for the most part people feel a distinct improvement in their quality of life. If the chiro questions this, refer him/her here to talk to actual AS patients about it.

My chiro is an invaluable member of my healthcare team. She knows everything that's going on and I have insisted that the other more mainstream members of my healthcare team share info with her. Even my rheumatologist has complimented her to me and he seemed very impressed when I told her how she treats me. Once he heard that, he totally backed down on pushing me to drop chiropractic. I'm not sure that he's totally happy with the idea, but he at least knows that she is not being irresponsible in how she handles my case.

Gee, do ya think I feel strongly about this?

Hugs,


Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"

talderman #310377 09/11/08 01:52 AM
Joined: Aug 2008
Posts: 48
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Well..that seems kinda ify to me. I know some have equipment like tenz units and massage and beds called spinalators that have rollers that roll up and down the spine. Some do use trigger point manipulation..but I know with the shape I am in ..I am not having any kind of manipulation to my spine.
Not trying to be negative but some Chiropractors think spinal manipulation will cure all..
Best Wishes

grl88 #310378 09/12/08 08:52 PM
Joined: Jul 2008
Posts: 28
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He did one adjustment on my at our first meeting and I kind of thought that he did not believe that I has AS? He had my xrays from 2 years ago and I showed him my most recent ones. He said it is just showing inflamination.?.? Then i gave him a copy of the MRI which stated masive growth had already started to occure.. So I am not sure what to think. The adjustment did not hurt? But I have to admit I really hurt the next morning..

Inanna #310379 09/12/08 08:55 PM
Joined: Jul 2008
Posts: 28
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Thank you SO much for replying. He did one adjustment on my at our first meeting and I kind of thought that he did not believe that I has AS? He had my xrays from 2 years ago and I showed him my most recent ones. He said it is just showing inflamation.?.? Then i gave him a copy of the MRI which stated masive growth had already started to occure.. So I am not sure what to think. The adjustment did not hurt? But I have to admit I really hurt the next morning..I might just need to look at someone else. He also said that he does ALOt os AS patients and they have no problems even ones with massive fusion up the spine?

talderman #310380 09/12/08 08:56 PM
Joined: Jul 2008
Posts: 28
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Thank you SO much for ALL OF YOU replying. He did one adjustment on my at our first meeting and I kind of thought that he did not believe that I has AS? He had my xrays from 2 years ago and I showed him my most recent ones. He said it is just showing inflamation.?.? Then i gave him a copy of the MRI which stated masive growth had already started to occure.. So I am not sure what to think. The adjustment did not hurt? But I have to admit I really hurt the next morning..I might just need to look at someone else. He also said that he does ALOt os AS patients and they have no problems even ones with massive fusion up the spine?

maryk #310381 09/12/08 09:00 PM
Joined: Jul 2008
Posts: 28
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OUCH
No worries just looking at my options for help with the pain..

Joined: Jul 2008
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Thank you SO much for replying. He did one adjustment on my at our first meeting and I kind of thought that he did not believe that I has AS? He had my xrays from 2 years ago and I showed him my most recent ones. He said it is just showing inflamation.?.? Then i gave him a copy of the MRI which stated masive growth had already started to occure.. So I am not sure what to think. The adjustment did not hurt? But I have to admit I really hurt the next morning..I might just need to look at someone else. He also said that he does ALOt os AS patients and they have no problems even ones with massive fusion up the spine?

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