Kickas.org Forums Treatments, Drugs and Alternatives Anti TNF and other biological medications Humira #3 - ow my foot!

Today was #3 Humida shot and my foot right now is doing something I can't find words for and wow does it hurt. Aside from my feet hurting all the time on top like they've been crushed, this new thing is on the side and throbbing.
Anyone else get this?

My thumb joints and hips are in lots of pain the last two days and I'm wondering if it's because the Humida wore off over the lay 2 wks. Today it's been like I just need to lie down from aches and fatigue although I have not exerted myself.

Does this ring familiar? I know in a day or so I'll have more energy so I'm going to just wait it out.
Thanks
Lucy

Hi Lucy
Yes Im having a lot of pain in my feet as well. I had major surgery on my foot when I was young and it hasent really botherd me since but now its agony when I try and walk.Ive been on Humira 3 months and must say although my inflamation is right down my pain is right up.
Kevin

Hi Lucy - We were talking about feet in another thread. Yes, from many of us. And yes, it can sometimes feel like one's foot is being crushed from the top. Horribly painful. We came to the conclusion that icing helped. Icing and also warm water, though not too much 'warm' as warm can exacerbate the inflammation - so advised a physio therapist. Cold was considered best. But again, don't freeze yr tootsies off...

As for 'along the side and throbbing' Yes again from a numer of members. Me included. Mine has been vile for a few years but the along the side bit has calmed down recently (like in the last few days!)

The spondy monster lurks in all kinds of unexpected places, ready to rear, so take care.

Molly C (France)

Hi Kevin & Molly,
Thank you so much for responding . I have been following the foot thread elsewhere too.
I found with Humira that I seem to get really low on the day of injection – no energy, slightly blue mood. I’ve been on Cymbalta for 3 months now and it had taken the heel spur pain away. So this new “panging” on the side of my foot got me thinking… is it just me, “IT” or the Humira?

I have not even considered ice since I work full time and its not convenient and so I just hobble a lot. Does not do good for the back either!

Incidentally Molly, I had heel spur problem in 96-98 in Paris and a rheumy there made tiny injections into the sides of my heel and within 3 treatments - poof – gone (that was after the Amer. Hosp doc stuck me with a huge needle that did not work). At the time I never thought it could have been a precursor to what’s happening to me now.

Back in 2001 I got uvitis. That eye doctor, bless her for being so thorough, sent me for blood work and thus started the trail … (elevated c reactive, “general inflammation”,
-HLAB27, etc.). But it was not until just 3-4 yrs ago the heal spur came back and the intense pain on the TOP of my feet was a new thing and I’ve gotten stiffer and stiffer all over.

I finally asked my GP “OK I just want to know if I have to live this way the rest of my life and stop complaining or…”. My GP had been perplexed about the whole foot thing. I thought it was just a “Lucy” problem. She gave me the chance to go to Lahey Clinic where the rheumy there ordered a specific MRI and – Poof! There “it” showed on the SI.

Many ASers report the same crushing feeling on the tops of the feet.

I will tell her next time I go see her so she knows - she is open to understanding the autoimmune thing I have. Did I mention I have very high insteps so much so that I can not get my feet into normal shoes….. What has helped was to wear shoes tight around the tops, but it still hurts. I even trace the alphabet in the air with my feet before rising. No help.

I guess, what I have to do is resolve to take it one day at a time at my age. I’m used to go go go. But that has not been the case the last few years. I worry that the Embrel did not work and Humira may not. And I still can not play with my 9 year old….

Thanks again for your input,

Lucy

Hi Lucy - you were in Paris 96/98...how did you like living in Paris. I was in St Cloud 79 - 81, having come from 7yrs in Bxls (loved Bxls.)

Yep, know what you mean about being approached with the 'huge' needle, I ducked out, 'No way' I told him. 'Stuff that for a game of soldiers!' got up and left. So, just got on with it. Interesting about the tiny injections around the heel - not what I've ever been offered... Which hosp was that in Paris?

High instep, has a name, think it is 'claw' instep. My s-in-l has the same and also has arthritis in her feet. MOST painful. She has difficulty in getting to grips with it, especially as she takes a 9.5 English size shoe, and the max you get in women's shoes in England is...8 - when you can find em! Crazy. So she has to wait to get over to the USA and then never has any time to go shopping for herself. Sigh.

Dunno IF the biologics work for peripherals...so, might not work on feet? Others who take will know - Mig might pop in, she on Remicade (I think) but is sure to have input.

Hope you can sort - and congrats on IDeeing a decent rheumy. That is 75% of the battle with this spondy monster.

Take care -

Molly C (France)

Hi Molly,
We lived there from 94 to 98 and I had to walk a lot. It was later that I had problems. We were in Neuilly first and I went to the American Hospital for the big needle! Later, we moved to the 16th (much better public transport there) and I went to see a rheumy called "Charley Cohen" on Ave Marceau (I Think - my brain gets foggy) I still have his card if you want the information. I did not know at the time what I was in store for!

I absolutely loved Paris and France and if there was a way to work and stay I would have - I speak fluently and never had any problems. It miss it and keep a desk calendar with photos to remembers. I especially miss the cheese - everything is pasteurized here. Funny thing is that when I had gotten the heel spur I thought for a while that the calcium in the cheeses caused it!

You are in Brittany - anywhere near the Enchanted Forest or Rennes?

At one point we took a drive to the center of France (literally) and there's a small town call St Suplice with a chapel in the middle of a field and a natural spring - so I dunked my foot and prayed to St Suplice (it took a vist to Charley for St Suplice to hear me!).

the Claw foor you describe - my foot sort of looks like when they used to break chinese girls feet - if you have ever seen a pic, its ghastly - now just the instep part. I still need a size 10 shoe!!


Its been quite a ride figuring all this out.

Ciao,

Lucy