Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Worried & I need advice please....

Actually Gerri...my iron level was low last month when I did my labs...and that's the very first time in my life...well, it said low red blood cell count, is that the same thing? Thank you so much, hugs too, bon ami...

Hi kurumi...I just called my rheumy, her assistant told me that she's out for the week but gave me the first appt. Monday morning...she said I may need to see my doctor here ASAP, that it sounds serious and scary...then she says the usual, "Don't quote me on that, it was just a suggestion, I'm not a doctor and I'm not suppose to give out medical advice...". I like her a lot, she's very god at what she does and she's great to talk to....I'm going to try again here...there's a new E.R. Director, he's about twelve and has the 'God complex', I've been bending Trudi & Gerri's ears about him for a couple of weeks now.....I don't want to go back and see Doogie Howser but it looks like I'm going to have to.... Thank you,

I'm never NORMAL, Louise... I Googled tranverse myelitis, I'm going to do more reading about it, thank you so much for the tip, my friend....

Thanks Kevin, I'm sorry to hear about your arms though....that scared me, I don't want that to ever happen again... I just don't know about this Enbrel, I'm still going in the wrong direction, or at least my body is....now I'm scared to go to sleep....

Hi Janet...well I've been on Avapro for high BP and Lipitor for cholesterol for about a year now and I take the MTX and Enbrel on Mondays but this happened before that....but it dawned on me a minute ago that both of my sisters have Multiple Sclerosis but I'm hoping that it's a pinched nerve or nerves, it'[s really good to see you Janet, I hope all is well with you...

Hi Farinelli, actually, I've been having trouble urinating for over two weeks now and my left foot went numb on the very same day and I had a little fluid on my ankles, which is a HUGE red flag for me, I've never carried fluid in my life, except when I was pregnant with Brandon, I developed toxemia...he was 3 weeks over-due but anyway, I went to the E.R. with that complaint a few days before Mom died, I left her bedside and went to the E.R. and sat for 6 hours or so to have that looked at and that new Dr. did absolutely nothing, he didn't have a clue....that's why I won't go to the E.R. ....so I got an independent doctor a year ago and I go there when I want to get a really good second opinion, he's great and I just put in a call to him....I went to him last week about the one foot being numb....

Oh wow Chris, I certainly hope that I'm not having cardio-vascular trouble....I'm so afraid of that, I was hoping for more like a bulging disk....thanks, big hugs....

Dear Chelle,
I have not had it that extreme. I have fallen becuase of the lack of feeling and thinking my legs were movng when they were not. Yep, give the young Dr. a chance. If ya got insurance, he will learn alot from you.
I have found if it is spinal, and I twist or role, I can wake things up a bit. If it is internal sutff, it does not seem to matter...
Tell me about your puppy- one you are going to keep?

Gosh, I wish I knew what it was, but whatever it is, it doesn't sound good. If you have insurance, go see someone quick; I wouldn't delay or mess around with that degree of numbness in my limbs. Hang in there and let us know what happens.

Michelle - please go to a doctor TODAY. Hopefully a competent doctor, but a doctor, and do not leave until they take action. It may be something simple like low blood iron but you can't carry on if you are also afraid to go to sleep.

Also - when all these current crises are past, I think you should get reassessed about all the different meds you are taking. There are lots of risks/side effects from long term use of BP and cholesterol medications. The docs are pretty quick to hand these out when they may not be necessary and there may be other things you can do to manage blood pressure and cholesterol.

As someone else said, it seems unlikely to be spinal cord because your upper and lower limbs are involved. That would require pressure/damage in your neck region.

I'll bet the numb foot is linked and, obviously, you can't rule out MS because of your sisters. However, I didn't think MS started in such an extreme way. Your sisters should know all about it and can give you advice.

Big hugs to you, sister. You are very important to us. Hie thee to a doctor quick as you can.

love and hugs