Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group My brother's success: AS in remission....

Oh I forgot..do you mind telling us how much it will cost for this life altering secret???

Hi there Will,
First, I'm glad your back in the drivers seat taking control of your health. Second, I don't think the second half of your message is going to float very well amongst most of the members here.

Quote:

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Most of you see the AS as a hobby, love to talk about it, love the attention you get from it.The more you "enjoy" the sickness the more you'll have it!

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Don't take this too personally but I think you have the wrong idea about what this support forum is all about. I, for one, am not here for 'just' me or 'personal satisfaction'. The main reason why I visit this forum is to help people like me, so they don't end up as bad as me, just as you have now. Yes I do ask my own questions too, but the questions I ask can't be answered by my doctors. I know there has to be hundreds of people here that are here for the same reason. I was going to go on, but I don't feel I should have to explain the reasons I am here, or about how much I hate AS and the what I think of it as a 'hobby', or try to prove I don't like talking about it and so on. Basically the only 'personal satisfaction' that you are referring to is I have a satisfaction of knowing I am not alone with this disease, and knowing that they can understand what it is I'm going through... but this is not a bad thing. Doctors don't understand completely. They are generally healthy and don't know what it's like to be taking the pills or living in pain.

Good luck to you. And I hope you continue to have successful results.
Take care,
James.

Help me my drs have quit because I'm not wealthy. I hurt so bad that waking is a burden. I have kids and TRY my darndest to show them happiness but the truth is I've lost mine. But not w/o a fight. How do you start to regain control? I want my life back! I deserve it! So does my family!

Hi Will, thanks for taking the time to pop in and post here at Kickas.

I'm sincerely very happy that you've been able to return to a normal life after dealing with AS. Luckily, I too seem to have my AS under control at the moment, without the use of medication (I'm very lucky that the no starch diet works for me). However, if it were not for this site and the support of the people here, I'm certain I would not have learned how to overcome the worst of AS. Just like you offering your success and advice via email, this site is actually very much the same in principle, only on a much more public platform, so please try not to judge us too harshly.

Although I understand from your post that you won't be back here again, I still hope you'll take the time to at least read up here now and then. If you do, I hope you'll begin to get to know some very positive individuals here who drop in to lend support to the others who need it. They do not dwell or find pleasure in having AS, but ask for help and carry on very cheerfully (despite some of them dealing with immense pain, while others have found a way to overcome the effects of AS). I'm proud to know them, and pray that one day I'll have even half the tenacity and strength they possess.

I also pray that you too learn that compassion, understanding, and gentle words towards others, when they are in the midst of their own battles (and especially when you have endured it yourself), are by far the greatest encouragement you can give. And a great way to begin the process of healing...

Much continued success to you.

i am deeply offended that you would think for a moment that i enjoy this, that i don't work with every ounce of my being every day to be as well as i can be, and that i don't do every thing in my power to be as positive as i can be. and thank goodness for the good people on here who let me vent when that makes me feel better, or get practical advice that does help with my symptoms, or more important than anything else, make me laugh and forget about how i'm feeling for a while. and i bet i speak for many others as well. i've heard this sort of talk before, had a colleague that said, "i think sick people just want to be sick and they'd be healthy if they just wanted to be." at this point, i did not have this disease, and so i spoke in behalf of a friend with MS, a stepfather with crohn's, etc. this is the sort of talk that tries to place blame, like its their fault that they don't feel better, like they are doing something wrong. i will not be made to feel guilty that i am not doing more, or that i am not doing something right. i will not be made to feel like i've brought this on myself. talk about negativity. and if you don't mean for it to sound that way, then sorry, but that is the way it comes across. interestingly, your comments don't really play on my emotions because they are so totally off base. i think it is dangerous when we assume things about others, so please don't assume these things about me or anyone else here, the things you say couldn't be further from the truth. you say you want to help others to feel better, i believe you. but the first step is to not judge others.

Hello Will,

It has been interesting to read your opinions first hand. Yours doesn't strike me as a 'how to win friends and encourage people' post but perhaps that was not your intention. If your intention really was to be helpful, I think it has fallen rather short of the mark.

If the day should come that you ever find your strategy wasn't quite as successful as you believe it to be in this moment, there is some chance that you could find both support and compassion here but far more so, I imagine, if you were inclined to demonstrate a little of the same.

I sincerely wish you luck and continued success in your treatment strategy.

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And to my fellow KA friends I'd just like to encourage everyone to give this the rightful attention that it deserves -- none.
mig

well I don't care. I'm not scared of admin........so there


As for Will, it fascinates me that such an upbeat 'Positive' person who has cured himself with 'Positive attitude' and doesn't want to hear 'Negative Stuff' can be the author of a post which is entirely negative.......seems to be a contradiction somewhere!

Anyway enough of this, so how are all of you wallowing spondys today? I must say that I spent an hour with a positive attitude last night and wow, a metal rod and 2 screws disappearred, and so I tried it again this morning and, b u g g e r t disc pads grew and I can now bend and touch my toes, wow I cant wait for my next hours positive thinking session, maybe my grey hair will turn black....


Hi Mig



clot

There is nothing wrong with that dapper grey hair of yours!

Hi Alan

Well I am!!!