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Joined: Jan 2010
Posts: 1
Lurker
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OP
Lurker
Joined: Jan 2010
Posts: 1 |
Hello everyone, My name is Ollie, just new to this site, I am 24 (english/spanish) and I was diagnosed with AS two years ago... at the time it just affected my pelvis and the pain was just that kind of shooting pain I am sure most of you know very well. Certain movemements would cause agonising pain. This would come and go but generally life was pretty normal and painless. I though what's the big deal about this whole thing, its not bad at all!! The last two months have been hell! my shoulders have become involved, and neck and uppers spine... it hurts all the time from mild tingling to full on aches and pains, oh yeh and I am growing a tail from al the bone fusion that is going on at the bottom of the spine! It got to the point where even a full dose os nsaids wasn't helping... so I tried the low starch diet... I havnt been eating bread, pasta, rice, all the obviouse ones and also some of the hidden ones lke in cooked veggies, etc... unfortunately it hasn't worked for me yet... its been about a month now. I was wondering if maybe I am not being strict enough.. I have now cut out dairy and sugar, will this help?? I would appreciate any advice from anyone experienced in this... Thankyou 
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kevin_A
Unregistered
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kevin_A
Unregistered
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Hi Ollie,
Welcome to KA sorry you have this but this is the best place you can be for advice and help. I cant advise you on the diet I dont do it but others will give you the help you need.
Kevin
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Joined: Jul 2003
Posts: 2,962
Presidential_AS_Kicker
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Presidential_AS_Kicker
Joined: Jul 2003
Posts: 2,962 |
Welcome to KickAS. I'm glad you found this group, they are a good bunch. Sorry to hear about your progression of AS, it sounds like it is happening fast.
HLA-B27+, JRA diagnosis in 1981, re-diagnosed as AS in 1988. Also iritis, colitis, and psoriasis. NSD + low carb helps me. My health makes it hard for me to post in a timely way.
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Joined: Sep 2009
Posts: 389
Fifth_Degree_AS_Kicker
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Fifth_Degree_AS_Kicker
Joined: Sep 2009
Posts: 389 |
Hey,well what always helps me is (embarassing) take a mild laxative (milk of magnesia or something) get the offending stuff out.Fast for 24 hrs and start over with just meat and salad and add one thing at a time....write down pain levels and what u added.If no pain go on to add more in the next few days,if pain do it again and start over.Periodic multiple water fasting helped heal my gut a lot too.I'm having to start over after Thxgvg got me !!!! Good luck Basically, all I eat are watermelon and green grapes (I test my melon with iodine) coconut flour baked goods,coke,white wine,eggs,spinach salad,zucchini,onion,tomato (if passes iodine)regular spinach,green beans,meat of course,jolly rancher candy and a little dark chocolate on occasion...Dairy flares me,as do almonds. Shauna
Off antibiotics and now exploring mindbody healing.
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Joined: Jul 2004
Posts: 1,934 Likes: 1
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Joined: Jul 2004
Posts: 1,934 Likes: 1 |
Hiya, regarding low/no starch diet...just cutting out the obvious starches is not strict enough. Do you test with iodine? Do you know the starchy additives in processed foods to avoid? eg. modified starches are added to alot of foods...E numbers in the 1400 range. Do you have Carol Sinclair's book The IBS Low Starch Diet? Very helpful if you're just getting started. Most people dont experience miracle results within a month. There may be SOME improvement within that time but most results are gradual over a period of months. All the best...see you in the NSD and diet-related forum 
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Joined: Jan 2003
Posts: 362
Fifth_Degree_AS_Kicker
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Fifth_Degree_AS_Kicker
Joined: Jan 2003
Posts: 362 |
Hey James,
So this is the new Format. Like everything else it will take getting used to.
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
just wanted to say hi and welcome,
like kevin said, others will help you with the diet,
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Jul 2003
Posts: 2,962
Presidential_AS_Kicker
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Presidential_AS_Kicker
Joined: Jul 2003
Posts: 2,962 |
Oh there you are, I haven't seen you here in a while.  Yep, this is the new format. I have been here a few times since the grand opening and I still need to get used to it a bit more. I'll be a facebook later tonight. I'll look for you. Take care, James.
HLA-B27+, JRA diagnosis in 1981, re-diagnosed as AS in 1988. Also iritis, colitis, and psoriasis. NSD + low carb helps me. My health makes it hard for me to post in a timely way.
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Joined: Aug 2008
Posts: 47
Member
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Member
Joined: Aug 2008
Posts: 47 |
Ollie,
Welcome, y Bienvenido! I'm so sorry you're having such a rough time with this. You've come to a good place here. Have you tried one of the biologics yet like Enbrel? Sometimes the NSAIDs aren't enough. I'm just learning to follow the no-starch diet myself, I'd recommend Carol Sinclair's book (I think it's published in England) on IBS and the No-Starch Diet. Also the No Starch Diet forum here.
Best wishes.
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