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Oct 6th, 2025
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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: Feb 2010
Posts: 1,524
Gold_AS_Kicker
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OP
Gold_AS_Kicker
Joined: Feb 2010
Posts: 1,524 |
Hello Inanna
I'm not sure about the SI thing? The pain is not always on the left. sometimes I get it down my right buttock and down that side. The pain shifts from side to side - therefore indicating AS I think. It's tricky to figure out - the human body is a complicated thing to understand! I will research SI though so I have a balanced view about this. Thanks for your suggestions.
KickAS and help others do the same!
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Joined: Mar 2008
Posts: 215
Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
Joined: Mar 2008
Posts: 215 |
I can see you have well and truly been welcomed aboard Tinkerbell. I just wanted to add that you must meet Molly (Mollyc1i) via a PM. She is one of the sweetest mother-figures on KickAs and she is an english woman living in Normandy.
Felicity
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
Hello Inanna
I'm not sure about the SI thing? The pain is not always on the left. sometimes I get it down my right buttock and down that side. The pain shifts from side to side - therefore indicating AS I think. It's tricky to figure out - the human body is a complicated thing to understand! I will research SI though so I have a balanced view about this. Thanks for your suggestions. that sounds like classic SI to me! and that's a classic AS symptom as well.
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Yup, the sciatic pain can shift sides on a whim. As can AS disease activity. It's kind of a never-ending roller coaster ride.
Hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Feb 2010
Posts: 1,524
Gold_AS_Kicker
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OP
Gold_AS_Kicker
Joined: Feb 2010
Posts: 1,524 |
Hello Felicity
Thanks for your message,
I have indeed been in touch with Molly - she sent me a welcome message and I PM'd her back.
Everyone I've met on this website is well worth knowing.
I'm so pleased I joined.
I hope I can be here for everyone as much as everyone has been here for me already!
KickAS and help others do the same!
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Joined: Jan 2010
Posts: 31
Member
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Member
Joined: Jan 2010
Posts: 31 |
Hi Tink, Thank you for sharing your story. Although I can't imagine living starch free, it is good to know it is an option which seems to work. So, thanks for coming out of lurking mode, you've already given someone hope  I'm fairly new here also and unlike most here I am really struggling with finding my sense of humor. I get killer migraines w/my AS creeping into my neck, it has been nearly impossible to smile for a few days now. It is not really 'me'(I really am an optimist), but I'm trying. Good for you taking such good care of yourself and being able to keep up with your little ones! That is wonderful lisa
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Joined: Feb 2010
Posts: 1,524
Gold_AS_Kicker
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OP
Gold_AS_Kicker
Joined: Feb 2010
Posts: 1,524 |
Hi Lisa
Thanks for your message.
So sorry to hear about your migraines and pain - no wonder you're having trouble smiling at the moment!
Sometimes you have to let other's do the smiling for you and sooner or later it'll rub off on you!!
How long have you had AS? Or when did you get diagnosed?
Hope you soon feel much better.
How do you do those smilies? It's bugging the hell out of me that I can't do it!!!
KickAS and help others do the same!
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Joined: Apr 2002
Posts: 12,465
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Joined: Apr 2002
Posts: 12,465 |
Hey Tinkerbell,
The menu for smilies doesn't show when you are using 'Quick Reply'... you will only find them when you reply to someone's post by clicking on the 'Reply' button you see underneath every post, (in the string that reads: Edit | Reply | Quote | Quick Reply | Notify | Email Post).
The smilie menu is a big happy face!
Hope this makes sense,
mig
mig
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Joined: Feb 2010
Posts: 1,524
Gold_AS_Kicker
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OP
Gold_AS_Kicker
Joined: Feb 2010
Posts: 1,524 |
 Hi Mig I think I've got it  Thanks very much!!
KickAS and help others do the same!
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