Kickas.org Forums Treatments, Drugs and Alternatives NSD and diet-related; link to interesting discussion about NSD

Hey DavidP - have no idea what its like where you are, but Mino is an approved DMARD here in the states for inflammatory arthritis, so maybe you could ask about it again. My rheumy has prescribed it to other patients (she specifically mentioned one of her female patients wanting to have a baby and not wanting to go on the big guns) and then went on to say eventually they need stronger stuff.
mc

Same here, David. I was prescribed minocycline by my rheumatologist and stayed on it for six months, as I think I mentioned previously. The rheumy gave me a choice between mino and mtx and I chose mino at that point. Looks like neither have worked for me.

I like this guy's style to be honest. he's very straight forward. I dont agree with everything he says but he bases his logic on his experiences which to me is the most important thing.

i like his style too, no frills - just says it how it is.

Hello Jet,

As I think you already learned, Tacitus at that site is also Dragonslayer here at Kickas. I used to post at SA site, but have not for 3+ years.

Not sure I always agree with approach John uses in getting his message out, but I respect him and have met him in person three times for which I am grateful.. honestly, he wants the best for all those with AS, as he has been through a lot with his personal case.

Tim

LOL I didnt know that. Makes sense though now that you mention it.

Hi MCM and Wendy
When I talked of the reluctance of the medical profession to 'back' Minocycline I was talking in a general sense. Historically there has been great opposition to the use of Minocycline against rheumatic conditions because it is an antibiotic and the model of arthritic diseases resulting from an infection, whilst once popular, has probably been out of favour for some decades. Originally researchers were looking for evidence of a causative organism in the joints themselves and the notion that a commensal gut bacteria could be driving such diseases is relatively new - and STILL not widely accepted.

You are right that in recent times Minocyline has gained some sort of respectability because it is now perceived as a DMARD through its action as a matrix metalloproteinase inhibitor.

And I also like the guys style! (your cheques are in the mail Jet and Finnari)

Cheers David

Thank you everyone who has contributed to this post. I have been a member of this site since late February but have been a bit timid to write a post, feeling there is far to much I still have to read from all your experiences in addition to trying out the NSD on my own. Though I have had some episodes where the pain has subsided for 1-7 days, something that I hope can be contributed to the NSD, since the starting of the NSD in feb the pain has always come back. This of course makes me question if I have been following the diet correctly or if I need to go to the next measure, i.e. taking out diary. For instance I have been making almond/fruit smoothies every morning for breakfast but the almonds were not blanched.... Ah, its a bit overwhelming.

I take IBprofen generally once every day (400mg) when I am not experiencing a reduction in my symptoms. I just got my hands on the liquid soluble Advil, which is another step in the elimination of starch from my daily consumption. After reading the IBS book and reading your posts it really seems that an NSD is a very personal process that ends up being different for each person. I wish I knew what quesitons to ask you all? How do I make this pain stop!? I know taking IBprofen everyday for a year will eventually catch up with me...

If any of you have any words of advice, motivational speeches, or war cries, they would be welcomed. I think for know I am going to eliminate dairy and look for some blanched almonds.


Thanks,

Wiley
Berlin, Germany

Hey Wiley,
Welcome! You're right, the diet does seem to be very individual, and the best way to work out things that might be a trigger for you is to keep a food/pain/symptom diary. If in doubt don't be afraid to ask questions here, or post what you're eating here for people to check and give advice on. Have you got some iodine? Best way to check if something is safe is to test it.

I'm in Germany too, and have found that the Vitalia stores stock coconut oil, coconut flour and fermented sauerkraut that are good additions to the diet. Also, making a long and slow simmered broth with soup bones and ox tails, as it has lots of minerals and gelatin that is good for the system. I hope you can get things under control soon, and kick the pain killers... they may well have been aggrivating things, even if it seems like you're tolerating them ok.

...If your failing to plan, your planning to fail....what plans do you have!!!!!...