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Joined: Mar 2002
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Hello,

Can confirm first year and half on diet was many ups and downs. Thankfully I had a base diet I knew worked that got me out of pain... but i always then struggled with energy and IBS/constipation typically.

Everyone of us is different in some way, so no "one size fits all solution".

I found the following to work for me when having issues:
- very strict NSD (no dairy, no processed food, no fancy supplements)
- 3 day apple fast with olive oil
- colonics (when at my worst and wanted out of pain quickly)

I even came off probiotics when I had issues as I think they unsettled my intestines when I already was in flare. Problem was then constipation. I had to make sure eating enough fruit/veggies (apple fast even helped in this area... not during, but after... during actually I would get a bit constipated).

Unfortunately there is not one solution.

Hope you can find some answers.

Tim


AS may win some battles, but I will win the war.

KONK - Keep ON Kicking
Joined: Jan 2010
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Alinus Offline OP
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yep.
for sure there's no panacee.

but for sure it feels good to see people trying to help you and share their experiences with you smile with this half of the road is covered already.

i decided to try - if possible - to exclude for at least 1 week (or more) all fruits (even coconut bread wich became somehow the base of my food) and to try living on meat, eggs, and some leafs like lettuce.

lets see how it goes. maybe it will help recover the things i seemed to lost on this month.

it sure will be difficult.
it's strawberries season here. Nice full sweet dark red organic strawberries.
and in a couple of days cherries will bump in. nice full sweet dark red organic cherries.
and there's more to come this summer.

oh! if i will not kill my self in the process of restraining from thesee i'll be here with the 5th month update too laugh

thank you all.


34. Some rheumys say AS stage 1-2 some others say USpA
Also UC - rectocolitis.

UC curently in remission since feb 2011.
AS/USpA remission march-aug 2011. Flare - sept-nov 2011 (antibiotics). Remission now...

Modified NSD/SCD. Cook your own !
____________________________________________________________
Mesalazine-Salofalk 500 mg/day

And the list of my medication has become verry short after some years on this diet smile
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I have strawberrys and cherrys on my backyard...beatiful, organic, smelly and tasty...yet, i can only see other people eating them cry I tryed some strawberrys the other day, and the result was lots os stomach noise during the night and a little bit more pain.

I am now 4 month on meat, fish, eggs and salad only. Still with pain, but my gut feels a lot better. In the beggining i was always tired, no energy, feeling like crap. Now i handle it better, and will give it some more time, hoping and praying for results.

I will also try to do a gut cleanse. Not enema, but drinking lots of salty water (like 8 cups) in half and hour. I tried it before, and the results are good. The concentration on salt is so high, that your body is not hable to absorve, so all you get is water runing through your digestive system, and the salt helps to remove toxins. I will also try a 5 day fast. I am doing a one day fast occasionaly, and always feel better, so I want to do it for a bigger period of time, increase the healing results. Will report later on how it was.

Give it a go on that strict diet. It's not easy, but you will make it!


My strenght comes from my pain!
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I think the salt water has to be epson salts- am I correct? Regular salt may make you sick (I think????)


The two times I initially went fruit-free, it was VERY hard to begin with.... I told myself I would go for six weeks and then re-access . In my food diary I was literally counting the days and feeling like a crack addict... both times I was "counting" for about two weeks and then stopped, because it did not seem like an issue any longer, as I stopped craving fruit. I was fruitless from June-Mid September the first time. When I reintroduced fruits the cravings were INTENSE and I went overboard. It did not seem to have a worse effect on my AS (I was very up and down then), but my hair started falling out by the handful in the shower... in scared the crap out of me and I have not tried fruit again. I have been doing lots of anti-candida stuff, hoping that next time I try fruit, my body can handle it better.

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Also, have you tried avocado? It is a great fiber-fill in and candida diets allow it. I have heard some people on NSD have problems with it, but many people do not. I have never found starch in the ones I have tested (California, organic), but I understand that you have to leave the iodine on them for quite some time before the starch would show up.

Stacey

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yikes light! youve got me worried to cut out fruit now.


AS & Fibro. NSD + no sugar
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Alinus Offline OP
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Originally Posted By: light
Also, have you tried avocado? It is a great fiber-fill in and candida diets allow it. I have heard some people on NSD have problems with it, but many people do not. I have never found starch in the ones I have tested (California, organic), but I understand that you have to leave the iodine on them for quite some time before the starch would show up.

Stacey


avocado is not a common fruit here. you can only find in in super-markets, imported stuff wich always seem not ripened enough.

will switch on the stuff i posted earlier and hope i will be able to keep on it.


@tiago.
too much salt and all at one in your system will affect your kidney's. most of AS peple already have kidney stones and other problems from NSAID. use with caution.


34. Some rheumys say AS stage 1-2 some others say USpA
Also UC - rectocolitis.

UC curently in remission since feb 2011.
AS/USpA remission march-aug 2011. Flare - sept-nov 2011 (antibiotics). Remission now...

Modified NSD/SCD. Cook your own !
____________________________________________________________
Mesalazine-Salofalk 500 mg/day

And the list of my medication has become verry short after some years on this diet smile
Joined: Jun 2007
Posts: 531
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Alinus you present a very complicated road map. Have you considered following Elaine Gotchshall's book on healing the intestines?

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Alinus Offline OP
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Originally Posted By: finnari
Alinus you present a very complicated road map. Have you considered following Elaine Gotchshall's book on healing the intestines?


SCD?
off course. if you've read it, and i think you;ve told me sometime ago that you've did, you must know that on the AS side it's somewhere between LSD and NSD.

Anyway - for UC doesn't work for me in the varriant she prescribe it. She has no problem with non or low starch fruits & veggies wich i cannot abide without reaction even boiled not to mention raw.

Best results i had this far were with NSD. But it seems as one goes further on with NSD one becomes more and more reactive to carbs (even to the monosacharides). At least for the medium time.


There is also a major monster i must work on - it's called stress. I'm considering fixing an apoiment with some psychiatrist and see if professional aid is needed.


34. Some rheumys say AS stage 1-2 some others say USpA
Also UC - rectocolitis.

UC curently in remission since feb 2011.
AS/USpA remission march-aug 2011. Flare - sept-nov 2011 (antibiotics). Remission now...

Modified NSD/SCD. Cook your own !
____________________________________________________________
Mesalazine-Salofalk 500 mg/day

And the list of my medication has become verry short after some years on this diet smile
Joined: Jan 2010
Posts: 69
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If you stress too much, then you should definitly try to do something about it.

Stress is a big enemy for your overall state of health, and with AS it's even worst.

Stress gives you a "flight or fight" response, and that affects your gut very much. I even read somewhere that stress alone, if chronicle, can by itself give you a leaky gut.

Have you tried meditation? It helps a lot.
Some changes in lifestyle may be required


My strenght comes from my pain!
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