Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Diagnoses

Kevin, I thought I said that. I know you are not putting anyone down. I can't speak for anyone else but You have always been a wonderful support to me and for that I thank you dearly.

I was just saying that it makes me feel less of a person when I can't get up and do things when others are. I think for many of us it is not just what is posted here that effects our thinking on particular posts/threads/topics.
For me I have had a relative research AS and then turn arround and say well so and so has AS, from memory Australian cricketer Michael Clark has AS and he can still play cricket, why can't you clean the house. I hope this makes sence.

As far as caracterizing anyone. I haven't seen you do this to anyone. Your post the other day, the one I mentioned in my responce to Michelle, got me thinking. I was in no way meaning this to be an attack on you and if you feel it was. I am truely sorry for that.

In essence I do infact agree with what you have posted here.
It is hard though to not be obsessed with searching to find out what is wrong with you when it seams that the pain is completely taking over your life. Even harder when the doctors can't agree on what symptoms rule in or rule out any particular dx.

Trish
xxx

Dow you big trouble maker! How dare you make rational statements based on experience and observation about an important topic and then support them with evidence.

OK, Michelle, I'm closing the link for now, probably good suggestion, my iritis is telling me to do that anyway, pretty much said everything I wanted to say on this-

But that comment wasn't posted on this thread Dow...you hijacked that from another thread...why would you do something like that? I can only think of one reason...

Michelle.
My post was also in reponce to this part of Kevins OP

You should look at the posts on here from people like James, Brad,John,Alan,mig,Kat,Wendy,Jimmy,Dear Possi,Molly And many others with severe Disease who are an example to every one how life can be despite the dreaded AS,RA,or any other terrible disease.

Underlining is me.

It makes me question what defines "severe disease" as apposed to mild/moderate. And based on those definitions, does this mean that some one with "mild disease" should stop winging, get off their lazy butt and go do the gardening or whatever. Because those that have "severe disease" can.

Please, I am in no way saying that this is what Kevin was saying. Only that that is how it made me feel when reading this.
This is only my opinion and nothing more.It in no way changes how I think/feel about Kevin. I honestly think he is great.
I don't wish to cause problems by voicing my opinion.

I think I get it but I was talking to Dow, I think...I'm not sure at this point, but I hope you didn't think I was upset with you...not at all, xxooxx

Hi Aussiegirl and Dow, and anyone else that found this topic upsetting. When I first read through the original post, what I saw was someone concerned about other people making themselves worried sick over a lack of diagnosis. Even if it wasn't Kevin and even if he didn't mention my name I would have thought the same... Or would I? I read it again and still felt the same. Anyhow, I decided to add a little something extra because I wouldn't want to see someone getting worried sick either, more specifically because I've done it to myself, but not over a diagnosis.

Knowledge is best for everyone... I have always thought that way. I have always thought that the best thing for all of us to do is keep informed about our health issues and do what's best for us. However, I wouldn't want people to go through the added pain and frustrations of having to do it all on their own either, including having to diagnose themselves. With the way things are, a lot of us already have done so or still have to, unfortunately. If it were a matter of their personal choice, I would much rather see someone enjoying life than eventually feeling miserable about not knowing what's wrong with them. I understand that not everyone has that choice though.

About the severity part... Having AS is severe business no matter how I look at it. Technically I do consider my self as having a 'severe'/advanced/classic case of AS, but there must be thousands of people worse off than I am (even though my back was assembled with a torque wrench lol). I'm glad I can joke about that now.

I hope every one can see now that my intentions were meant as support, and not to drive people away from getting the support they need or something like that. I'm sure Kevin had the same intentions too.

Take care,
James.

just for the record... i personally was NOT upset by this or these posts. i was merely putting in my 2 cents :]

So we should wait around for someone to diagnose us with AS before we should consider doing anything about it to help ourselves?eg diet, supplements, fish oil etc.*at this stage without drugs because no DR will give drugs without diagnoses.
In the meantime dont worry what "pre AS" might be doing in the way of destroying your joint functions - after all it only takes a Rhuemy about 5 years from onset of first symptoms to "Diagnose" AS. Then everything's gonna be alright because DR got the DRUGS!! and drugs are always the best option....just ask your DR. Pain? what Pain? does pre AS come with pain too? wow, i thought pain only arrived once you get the AS diagnoses stamped on the medical records.

Hey Jet, I don't believe anyone was saying that and if you go back and read the thread again I think you'll see that....so easy tiger