Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Diagnoses

Hi Trish, aw gee thanks! x

And I agree that it should be perfectly okay to disagree as long as we can do so politely and with respect. Cripes, I disagree a lot of the time but that doesn't mean I am not genuinely trying to be helpful!!

I even offer unsolicited advice occasionally - ack! Alan really does need to eat more carrots tho. lol

Hey Wendy, I "goofed" a couple of months back myself...remember? I bawled my eyes out over that one and beat myself up big time and wanted to crawl into a little hole somewhere and not come out. What a disaster.

We all do it..it's true we're only human for goodness sake and typing in an internet forum can make our intentions hard to read at times as things don't translate well and can be miscontrued.

KA is definately the place for you..we love & value you.

That's kind, Kiwi. Thanks.

ill say the same as was said to me when i felt like this..dont take away your tile Wendy, KickAS is a better place with you in it.

Wendy, you are NOT going anywhere!!

You DO know that I adore you! As well as everyone else on this thread that I know it looks like I am currently at odds with, including Kevin, (even if he feels I screwed up this discussion) Michelle of course, (even if she now hates me, I most certainly don't feel that way about her!)

TARZAN: TARZAN AGREE!!! KA PEOPLE GOOD!!!

and Sue, naturally, may not always read every word of her long-winded posts, but love them too..

TARZAN: LONG-WINDED!!! HA HA!!

Hey, quiet, Ape Man!!

and just need to add that I'm sorry if I offended anyone, (I too had something I needed to get off my chest)

TARZAN: (BEATS CHEST) followed by (TARZAN JUNGLE YELL)

so with that, good night everybody, off for more Pred drops, talk to you all again tomorrow

I would like to apologise to any one who found my post upsetting I didn't mean it to be like that.I thought it would be good to have a debate about self Diagnoses but I was obviously wrong for that I'm sorry it seems some people don't want polite discussions on here.
I thank mig for her post and all the people who have said they thought it was a good post.
I will tell you why I posted this in the year I have been on KA I have noticed some people becoming obsessed with trying to diagnose them selves and felt this could be a dangerous road to go down.Why
because last year I was in a lot of pain in my shoulder neck and armpit I diagnosed myself as an AS flare and it would go away.
I happened to be at my Doctors for my drugs review and when he asked how I was I told him.So he examined me and said immediate bloods and chest xray didn't say why just come back and we will look at the results.I didn't think anything of it.When I returned he was very happy I asked why he said I'm really pleased your tests have all come back negative I was really worried about you the symptoms you have are classic for lung cancer.So if I hadn't mentioned it while I was there I wouldn't have had the tests and if I had got cancer would have carried on not knowing.
And that's why I dont believe in self Diagnoses.
I am upset at the way Dow insinuated I should give more support and understanding and that people diagnosed with AS should distance themselves from those with no Diagnoses. I have tried to support and help every one on KA both new and older members but this is obviously not enough.
I have my own problems coping with the pain and every thing else that goes with AS I don't need this as well so I don't think there is any point in me being here any more.I am going to stay of now while I decide what I want to do for sure but am fairly certain I will leave.when I have calmed down and had some time to myself I will post and let you all know.I have made many very good friends on here and you all mean a lot to me and I would miss you all.But its time to put me first.

Kevin

Kevin, I am sorry your post was misinterpreted.

I totaly back up what you've said there and i understood your point from the start. That was not a post about how to include or exclude someone from a group, but a point of view of how selfdiagnose can or cannot make things worse for those who practice it.

At your age and with your experience you must know that sometimes we are extrasensitive and it's verry easy to start an argument with someone with AS even with good intentions...

So stop being extrasensitive and let's talk about the main subject of this thread.

KEVIN i think u are great and i totally agree with your post.some people like drama and like to read other things into what you post but sod them,you carry on being the joker in the pack i love reading your post and hope you carry on doing so..respect to you kev your older and wiser than many on hear and your experience is valued

Thank you, Jet. As I said to Kiwi - that was very kind.

Sorry, Dow - my comment about wondering if KA is the place for me was not meant to elicit words of adoration! Although naturally I appreciate them.

The thing is that I try to measure each word that I write - I do write quite carefully without knee jerk reactions, so I found it disturbing to have both my intentions and specific, carefully chosen words, cause offence.

Apart from the brief hiatus on the lupus board that I mentioned, this is the first forum that I've participated in. My husband has belonged to several (to do with metal and wood working) for a long time and I used to think that was strange. I thought, How can you build relationships via an internet board?

But, wow, it IS possible as I've discovered on KA and come to care for so many people here. So the idea of my words creating the furore they did was very disturbing to me and made me question the reliability of "internet" relationships based purely on the written word. That's why I wondered if this is what I want to do.

Anyway, your words of caring to me and others are much appreciated. I've always enjoyed your brilliance and sense of humour.

I AM worried about Kevin right now. Really don't want him to leave and I'm aware that he is very serious about it and has been thinking of it for a while.