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Joined: Apr 2010
Posts: 716
Decorated_AS_Kicker
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OP
Decorated_AS_Kicker
Joined: Apr 2010
Posts: 716 |
I haven't been feeling good for a little over a week. The issues started out mild and then by last Thursday I was really not feeling good at all.
I have been on Apriso since 12/2008 for ulcerative colitis and Humira since last May. Several months ago when I saw my GI I asked if I needed to continue Apriso. He said let's continue Apriso for one month. I did and ran out of it several weeks ago.
About a week after stopping the Apriso I started getting gas pains at first. Then pelvic area pains started. My first thought was, "OH NO! I've seen the end of the Humira benefits." I had totally forgotten about the discontinued Apriso. Then I started getting a mild temperature, which was something I had before starting Apriso. So, I called the GI's office to get approval for more Apriso. The GI is in the hospital...he isn't supposed to get sick!
So, I have to wait until next week to fill the Apriso prescription. I hope so much that is the cause.
John
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Joined: Mar 2002
Posts: 9,552 Likes: 10
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Joined: Mar 2002
Posts: 9,552 Likes: 10 |
Sorry to hear feeling worse, hopefully you are correct and this can clear up.
Tim
AS may win some battles, but I will win the war.
KONK - Keep ON Kicking
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
i hope so too! here's to feeling better soon!
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Good grief, I hope you can get the Apriso again soon. Hmmm. Odd that your GP didn't arrange for someone to look after his practice while he was in hospital. Hopefully, he's out soon.
Hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
Oh wow, I hope you are able to get a refill soon. It sounds like that med is something that really works for you. Prayers and good wishes that you feel better soon! 
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Apr 2010
Posts: 716
Decorated_AS_Kicker
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OP
Decorated_AS_Kicker
Joined: Apr 2010
Posts: 716 |
I got the Apriso today...we'll see how it goes from here. I do know one thing now. I need to continue the Apriso even while on Humira.
John
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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
So how's the Apriso working for ya today, any better? Sorry I missed your post here the other day, computer down for a week.
Cindy
" That which does not kill me only makes me stronger"
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Joined: Apr 2010
Posts: 716
Decorated_AS_Kicker
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OP
Decorated_AS_Kicker
Joined: Apr 2010
Posts: 716 |
Hi Cindy,
I just took my second dosage moments ago. I'm still a "gas factory". I woke up with pelvic joint pains that went away for the most part after walking around a bit. I think it is going to take a few days to know for sure.
Thanks,
John
John
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Keeping my fingers crossed for you, John.
Hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Apr 2010
Posts: 716
Decorated_AS_Kicker
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OP
Decorated_AS_Kicker
Joined: Apr 2010
Posts: 716 |
I'm still not feeling good even after going back on the Apriso for 4 days. I think I'm worse. The pains are not limited to the pelvic area. Occasional pains in my finger joints...shoulders...knee...feeling feverish every now and then. I'm starting to wonder if this is a reaction to the Humira. That would be really disappointing...I felt so good. To make things worse my rheumy that I trust is gone until October! I'll try calling her office on Monday and see what happens. My next Humira shot is one week from tomorrow...not sure if I should take it. 
John
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