Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group in a not so good place

Hi Everyone,
I hope you all have been doing well lately. Me? Well... not really. This is why I haven't been here in a while. I am getting another rheumy...again. My current one left state like my prior family doctor did. I have been without any pain medicine for at least a month already and my current family doctor won't help because he says he is afraid to prescribe me something my rheumy is *supposed* to prescribe me but my new rheumy won't re-prescribe me anything without seeing me for the time which is supposed to be in 7 days. This rheumy told us that he will probably send me to physical therapy again before he will consider prescribing me anything. I just got out of therapy a month ago or so, but apparently that doesn't matter. My family doctor tells me to ask my rheumy and my rheumy tells me to ask my family doctor, and they both tell me no. I've asked each of them 3 times already over the past month or so over the phone.

I still have some mobic left but it is only a low dose and my stomach and heart rhythm can't handle any more nsaids than that. The mobic by itself doesn't do much for me, but everything I'm trying to do combined only helps me a little. I think I am having a long lasting flare up but without taking my usual low dose of pain killer, I can't tell if it is a flair or if I have forgotten what it is like to be in this much constant pain.

My psorisis on my hands and feet still haven't gotten any better too. I hated having it before but now I really can't stand it. I'm always itching, blistering, peeling etc. On my feet it's a bigger problem because I can't reach my feet. At least with my hands I can do something about it.

Moodwise I'm doing even worse. Depression is coming back strong. It is mostly because of the pain but for about 2 weeks now I have been trying to play an online multi-player game but that community is so fowl and rotten that it keeps ruining my mood to play. They even try to kick me out of the server for the fun of it. They don't know me and I never talked to them... they're just not friendly to anyone. Every time I play I get angered and depressed because of the way I'm treated. That was the first and last multilayer online game I'll ever play. I'm glad the people of this community aren't anything like like that.

I have to go to bed now because wifey said so...
I'm tired now anyways.
Take care,
James.

Hello James,
I'm so sorry mate you seem to be going through hell at the moment it must be terrible with no meds what the hell is wrong with your Doctors they sound a right pair of idiots. Sounds like by the time you get some meds your going to have a long fight to get back were you were.It really pisses me off that some one as bad as you who has gone through so much for so long isn't getting the help they need.
Hang in there friend you know you can PM me if you need to talk I'm always here to help if I can.


Kevin

so sorry james, these are the kind of games my new GP and some of my specialists are playing right now. but at least i'm not in desperate need of anything at the moment. but i so know how it feels to be a human ping pong ball like this.

hopefully someone can give you advice on how to break the viscious cycle because i've not been able to figure it out. my solution is to find an other GP who will be more helpful, but so far i've only found someone i have to pay several hundred dollars out of pocket to see. hope you figure out a better solution than that.

i hate mean people! GRRR! especially when they are being mean to one of the nicest, kindest people i know. you don't need them, you have us! but too bad they have to ruin something that should be fun for you. i don't really know why some people are so mean to others.

I wish I was a doctor, i'd give you the meds you need. Hang in there and be strong. Before you know it that first appointment will be here and hopefully you get what you need. Its unfortunate that you have to suffer because the blind ignorance of your family doctor. I can understand a new doctor not wanting to prescribe something to a patient he hasn't seen, but your family doc? what an idiot...makes me mad.

Sorry to learn of your issues James. Could you go to the ER and get some pain rx? Hang in there my friend! Better living through chemistry!

Craig

Hj Janes

It really makes me mad to hear you are pain and no one will help you, I know another waiting game...all so unesassary. I wish I could come there and start yelling at someone. No one should be made to endure pain with this condition, not like you just walked off the street and demanded pain pills. Excuses of policies and procedures get in the way of common sense sometimes. Hope you figure out a way to straighten things out for you. Hate to have steve sick Bruno on them. Hope you start to feel better too.

Oh James, I am so so sorry to hear that you are going through such a really rough time again and that the pain is back this badly.

It must be so incredibly frustrating to have to go through the process of breaking in yet another new rheumy. It seems that just when they finally begin to understand your situation, you have to face someone new. I hate that you have to wait 7 more days - and this excuse of passing the buck on providing you pain meds is a poor show on both their parts. Perhaps if your new rheumy wants your GP to prescribe the pain meds -- take him all of your GP's contact information (phone, fax, full address) and ask the rheumy to phone your GP and discuss this. Tell them that you will be suffering unnecessarily for the additional week if they can't make 1 phone call? Maybe that could help?

I'm sorry to about the meanness of some people on some online places, that is just a sad state that people can be so rude and bullying. Stick around with us - you have family here that always cares about you James!!

Warmest hugs,
mig

This really sucks! I hate it when docs pass the buck, with the patient being the one that loses. Don't know if you have any other docs, maybe one of them would help out for a week?

If it is really bad, maybe go to the ER. Some of them aren't going to give you a whole rx, but maybe enough to get through a week. (Just had hubby at ER this past week-big sign on the door: "we don't fill pain rx's".) It would help if you had history in the hospital that you visit, like previous surgeries, xrays, etc. Our insurance plan centers on the hospital--a lot of the docs are on the electronic medical record, so previous rxs are shown, dxs are shown, etc. That way the ER could see what's going on with you. If you get your xrays done at the same hospital, they can see the results and know you aren't feeding them a line just to get narcotics.

People can be mean. Probably more so in the online community which has no face-time. Easy to be mean when you don't see people in real life. It will be their loss.

Sorry to hear about the depression. Pain can sure make it worse. Wishing you some peace as you go through the next 7 days. Hope the rheumy is worth the wait. Double hugs.

Sorry to hear about the rough spot you have hit. I wish I had a great idea to pull you a bit out of things but I ain't that smart. I would send my ever lovable big buddy Bruno your way to persuade your Doc or just to hit something, but he's a closet Taylor Swift groupie since my girls started him listing to her stuff and he's out working as one of her roadies.

Awww James, Gentle Hugs

Is it possible for you just to go to the ER and explain your situation and hopefully they will be human and sympathetic and give you some pain killers or a script for some.
I get so angry reading your post...how dare doctors leave you in the lurch like that! grrrrrrrrr. They are suppose to help no hinder!
Anyway James take care try and keep you chin up and may it bring some comfort to know others are thinking of you and sending healing thoughts your way.

Noelene