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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
Hey, My sister is feeling like a loser, because her fibromyalgia and osteoarthritis are getting her down. Does anyone know of a good forum for either illness? I've invited her to come hang out here in the family & friends section. Truthfully, she's HLAB27+ and has chronic sacrum pain and stiffness, and spontaneous peripheral joint fusing since early teenhood... but her rheumy is sticking with the fibro/osteo diagnosis. Thanks in advance for answers. I heart you all! Ya'll make me happy and sane (r). 
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
i checked out a fibro forum for a while since it was something that kept coming up. but i wouldn't recommend the one i found, don't even remember what it was.
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Jan 2010
Posts: 2,105
Major_AS_Kicker
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Major_AS_Kicker
Joined: Jan 2010
Posts: 2,105 |
I've only got a fibro/osteo diagnosis at the moment, but having checked out other forums this one fits me much better and has been much more helpful. Why doesn't your sister try lurking here for a while?
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Erika - Can your sister get a second opinion with another rheumy. With those symptoms highly UNlikely that it is fibro, sounds more like AS and, the B27 positive is for sure a heads-up!
MollyC1i - Riding OutAS
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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
Thanks people! I sent her the link to this thread as well. xo
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Another thought, send your sister the ASAS Handbook. Great information on everything Spondy incl the 'hows' of DX!! (Just *wish that ALL rheumies would read it. Sigh.)
MollyC1i - Riding OutAS
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Yes, I agree with Molly, it sounds like your sister may have AS...us Asers can spot the symptoms a mile away...and as you know, early treatment is crucial...I wish her the best, it's great that she has a caring & helpful sister like you... 
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF  
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
I've only got a fibro/osteo diagnosis at the moment, but having checked out other forums this one fits me much better and has been much more helpful. Why doesn't your sister try lurking here for a while? sounds familiar 
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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