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Joined: Nov 2003
Posts: 8,190
Very_Addicted_to_AS_Kickin
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OP
Very_Addicted_to_AS_Kickin
Joined: Nov 2003
Posts: 8,190 |
Been a few rough days....
Had some stomach issues we think from being in an ER with a friend last week, her parents were both in there at the same time..i knew it was risky and I should have had a mask but no I wanted to be there for her.
When you are on a biologic and you have heart failure maybe I should get a clue....ahhh! this has made me think.
That of course kicked the heart failure in full action..out of it the last 2 days my pulse so low that Bill had to check my pulse and make sure I was still alive, I was at 50 beats a minute (way too low) called the Doc went on major lasix. You know something is horribly wrong with your heart when it is almost 80 degrees in your house and you are freezing..lol the family is begging me to give them some AC and I am in bed dressed with blankets and goosebumps.
I keep thinking this is the week for the Cardiologist but alas another 2 weeks has gone by, waiting for the last Remicade to post with BCBS for the remainder of the deductible close to $5000.00 and they posted 1 page surgical stuff for $100.00. In the past it has always posted within 2 weeks, we are now working on 3 weeks wednesday....ya know a person could seriously die before getting help and that sucks for someone like me that has 2 insurance policies.
Guess Im just feeling bad and feeling sorry for myself..Tori will be 17 next sunday and Im just hoping I can struggle my way thru that and breathe thru her birthday...accidently slipped and said something about my heart today and Ethan flipped out (remember we havent told him) now he cries and says I wont live to see him grow up....
The days just keep gettin better...sorry for the rant!
Speak kindly, Live simply, Care deeply, Love generously, and BLAH, HA, HA, LOUDLY! every chance you get.
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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Jan 2009
Posts: 313
Fourth_Degree_AS_Kicker
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Fourth_Degree_AS_Kicker
Joined: Jan 2009
Posts: 313 |
Virtual hug on its way to you. I'm sorry the suffering is so intense now, and I'm praying you can get through this and your body will heal. I'm also praying for the financial problems and the strength of your family as they are supporting you (and so worried).
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Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
Hugs, girl...please make the appt soon or go to the ER. It seems you are taking unnecessary risks. I'm worried about you.  I hate to say it, but Ethan may be on to something.  Please get help. 
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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Joined: Dec 2008
Posts: 5,231
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Joined: Dec 2008
Posts: 5,231 |
Wendy
Rheumatoid Arthritis
Methotrexate, Celebrex, Plaquenil
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Joined: Apr 2011
Posts: 49
Member
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Member
Joined: Apr 2011
Posts: 49 |
Hi,
I was just told it's okay to complain, it helps to get it out. I was taught from a friend to do "morning pages", and it has helped me a lot. She told me to write 3 full pages of what ever is in your head when you wake up, it doesn't have to be pretty or well written(no one will see it but you anyway). Write it down, even if it makes no sense at the time, just keep writing until you have filled the three pages(and if you are going through hell right now it shouldn't be a problem). It may sound silly, but try it for a week and see what it does for you.
Hugs Nette
Only that in you which is me, can hear what I'm saying.
Baba Ram Dass
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Joined: Apr 2009
Posts: 1,595
Gold_AS_Kicker
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Gold_AS_Kicker
Joined: Apr 2009
Posts: 1,595 |
Louise Happy to be a physio by day, not happy to be a Spondy 24/7! 
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF  
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Joined: Mar 2008
Posts: 3,233
Imperial_AS_Kicker
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Imperial_AS_Kicker
Joined: Mar 2008
Posts: 3,233 |
Dow
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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