Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group With my Heart in my Hand

Welcome, amrh.

You might get more responses if you post this as a new thread in the forum.

Karen

Hi amrh, I echo Karen's sentiments of welcome. I would also suggest that you'll get many more replies of welcome if you repost in the open forum.

Hugs,

Well...I can tell you ALL that this is probly the most childish, immature thing I have ever been thru....is everyone 5???

I just dont get it...I come to the SAME site, with the SAME people and if there is someone or something I don't like I delete it, ignore it or chalk it up to immaturity. I have been thru it all here from defending myself to being sanctioned for sticking up for myself and others.

It is a site people....good God it is so sad when grown people can not get along. You did this and you posted that...Im sitting here wondering if I am even gonna be around in the next year and some of you are acting like this is armagedden...Im sorry but some of yall need to get a life, if it is THAT painful, THAT hurtful, THAT bullying, then move on which is what I am hearing.

And NO ONE HERE EVER has the right to judge, bully someone into thinking that their pain isn't real or just because you don't have AS that you aren't as sick.

I never saw when I joined this site that if you dont think you have AS DON'T JOIN, if you aren't sure if you have AS DON'T JOIN....WOW! I wasn't diagnosed BUT I joined here because there were people here that had some of the same symptoms as me FOR THE FIRST TIME I FOUND PEOPLE LIKE ME!

WOW! I actually thought we all had lives no matter how screwed up they were, it amazes me that grown adults have time for this kind of crap...good thing Im not Admin there would be several of you gone just for being pains in the butt!!! I can not believe yall are acting like this and some of you have been my dear friends for a long time...WOW!

Well, I am going to go take my heart meds and hope I get thru the day loving on my kids, for those of you that was to act like [*bleep*] go right ahead, Im not beating around the bush nicely Im telling yall straight up to cut it out..Im not leaving...and I think Admin needs to CUT the troublmakers regardless of if you have AS or you don't NO ONE here should be made to feel worse than we already do!

Grow up people!

ok thanks not the best ill try and find how u do it

You're right...I'm out of here...because I'm above all of this nonsense...it no longer provides the support that I need and I'm tired of "the mean girl circle" ...like I care, I stand alone and fight my own battles but this isn't even worth my time...two words: Jerry Springer...and I can definitely fight my own battles

P.S. This isn't high school people, you women are trying to run a popularity contest...is this your last chance to be "in the right group"? I can tell you as one of THOSE girls, you simply don't make the cut...

Right on, Angelmom! I had the misfortune of running to a 'member' who was an incredible bully. My poor tongue was almost bit through by my holding it back from 'really' saying what I wanted to. To bug off, in a nice way of saying it.

Now I am getting alarmed because it looks like a few of my treasured friends here are leaving.

Everyone: please don't leave. Don't react in haste. When you leave, they win. No one knows what is going on in their heads but them. It is downright mean of them to attack KA members. Last I checked, we were not playing a Survivor game but actively living with what our life's cards pulled up for each one of us.

We all have our own ailments. They have theirs. How dare they finger point! We are all adults here.

I hope I am making sense? I also wanted to thank each and every single one of you. You are all my heroes, the folks I look up to. You are all my friends. To the 'trolls' and you all know who you are, nice try. Remember the saying, the grass is always greener on the other side? Well, how's about you mozy along now?

WOW Michelle...really???? I don't consider myself a mean girl just tired of this nonsense and I'm not taking ANYONES side just the right side.

I really don't understand why YOU of all people can't just ignore what you don't like..really?

So I guess you will be joining the all exclusive club for AS'ers only?

You for one have surprised me, I always thought so much more of you than this....

And something you AREN'T getting it's not about popularity, nor is it one of "those girls" I am what I am if you don't like it ignore it, if you don't like it don't respond...do you not think people here make me crazy? I guess I don't live my life for KA I have come for support, friends and people that [*bleep*] me off I ignore.

I have been fine on here..you seem to be the one that has a burr up the butt so what does that make you???

No it is time for some people here to leave...but Im not gonna be one of them..lol

Im just like with what we all have to put up with pain, family, friends, Drs, meds and then someone HERE wants to act like an [*bleep*]....don't think so!

We had a post like this a few years ago and people QUIT acting like your pain is better or worse than other peoples it's not YOUR place to judge...SUPPORT do yall not get it?

Yes it looks like some of my very good friends will be leaving too and that is sad...I guess I didn't really know them at all. I thought the motto is to fight for what is right not what little Sally Sue thinks is right!

That was NOT directed at you Lisa, I don't consider you to be part of that group nor do I feel you're anywhere near a 'mean girl', I love you do death...I'm so sorry you think so little of me...the spur in my butt is that everything I say is challenged or shot down by 'THOSE' girls and I'm not the only one...as I CLEARLY said to Kat, I'm not taking this personal, I CAN and WILL stand up for myself and my friends, what I WILL NOT do is sit here and do nothing while the group I was referring to carries on with this nonsense of attacking others...I'm TOO SICK for all of this right now, I just got out of the hospital, I dropped by for a little much needed support and met this...I'm just trying to get through this nightmare like EVERYBODY else...thanks for the support girlfrin' ...many, many have already left because of this situation, are they all wrong?! I think not!!! It's really sad to see that we obviously were not valuable or welcome members of this community and that we won't be missed... I guess you are referring to me when you say it's time for some people to go...your wish is granted, my dear...POOF!!!

I think ALOT of you that's why this upsets me...but I know that you have been unhappy for a long time also and maybe this isn't a good place for you if it does cause so much stress...I mean you can be a right fighter or you can move on and have a more quiet existance...I wouldn't like it but we all have to do what we have to do right?

I just don't get why...well let me say it like this I know who this is directed at and they are my friend too....when I post I say whats on my mind and try to have the little tact that I have to get my point accross, I know how I feel I would NEVER imply that my pain is worse or better than anyone elses here..I might think it but it's not my place to say it. WHY DOES IT MATTER, why does it matter if someone does or doesnt have AS? They might and just dont have all the signs I did I wasnt diagnosed until years after the symptoms if that was a requirement to get in here then I would have been screwed and probly dead by now...you or people here really think that this site should be for AS'ers ONLY??? that is one of the cruelest things I have heard..Im having a hard time wrapping my head around that you would really feel that way.

If you or *** have a problem with *** then hit the ignore button it is THAT simple, it really is you wouldnt have to see 1 post, 1 thing from that person ever again and then we could all get on with it....why not just do the "right thing" hang with who ya like and ignore the rest...I can't imagine letting a place, person have that much control over my life I mean I thought we all had so much to do...I have no life and I dont let Kick or the members get to me...I guard Kick and my friends here with a passion and Im gonna do what is right not what is popular...love you and always will, you have more class in your pinky than I could ever hope for but if your not happy then maybe it's time to go.....to do what this member is doing is just wrong, totally wrong, morally wrong, and immaturally wrong...straight up!