Kickas.org Forums Treatments, Drugs and Alternatives NSD and diet-related; AS, Low-carb diet, Probiotics and Ebringer

Thanks Jroc for that article. I have already printed it out.

Your warning about too many anti-biotic courses is taken on board, Zark. I'll see how the first one goes and if any improvement is sustained.

wallyb,

What rheumatologist do you see?

I'd also be interested to hear if you manage to get antibiotics. I also live in Perth.

Phil

Activated charcoal has been called a natural antibiotic. I wonder if it would help the cause while you're waiting for the antibiotics. Here's one site that has a lot of info about it.

http://www.charcoalremedies.com/health_conditions

Another type of natural antibiotic for the gut is diatomaceous earth.

http://www.earthworksde.com/page/page/4135163.htm

>> Your warning about too many anti-biotic courses is taken on board, Zark

I think that a good range of probiotics will prevent all those problems anyway - ie. complex probiotic, yoghurt, sauerkraut...

>> diatomaceous earth

Very interesting Violeta !

What I can eat on the diet.....dirty water!

you think wrong i believe - because one has hundreds of good bacteria strains that will be killed by antibiotics and only a handfull of strains that will come from probiotics or food that contains probiotics. it will minimise the damage, but it will not cover it.

i believe antibiotics are two-edged. you never know how you will come up after them - see John and others who are verry happy, see me and others who needed months in order to came back from a flare induced by antibiotics. true, the type of antibiotic will probably make a difference, but i will not experiment anymore.

Hi Philsta
The 2 rheumatologists I have seen are Mastaglia (Fremantle) and NG Kong-chak (Nedlands and Applecross). They are both late middle-age and have a fixed mainstream medical view which excludes the theories of Alan Ebringer on the causes of AS.

I know from day to day, hour to hour, over a period of years that diet affects my condition and to be told that I am mistaken is an insult to my intelligence.

I will not be seeing them again. If you come across a rheumatologist that has an open mind on this subject please let me know.

Our concerns about over-use of anti-biotics were premature. My GP was not prepared to put me on a course since the justification was not mainstream medecine. They are the gate-keepers and there is nothing I can do to change that.
However she was prepared to accept the drug recommended by the rheumatologist, Salazopyrin, which he described as an anti-inflammatory but which is also mentioned in the article of jroc(?) as affecting the gut -

"Alteration of bowel flora has been a proposed mechanism of action for sulfasalazine, and it has been shown that patients with inflammatory bowel disease treated with sulfasalazine have decreased numbers of nonsporing anaerobes".

I spoke to someone tonight who has tried sulfasalazine and it made him very sick. There is a long list of side-effects for both sulfasalazine and Moxifloxacin, the other drug mentioned in the article, so I am not keen to try either.

I need my GP to prescribe my anti-inflammatories but otherwise it is up to me to overcome my disease using my own resources and help from others such as this website. I did it 8 years ago and I can do it again.