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#501237 03/09/14 12:58 AM
Joined: Dec 2003
Posts: 1,368
Bronze_AS_Kicker
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Bronze_AS_Kicker
Joined: Dec 2003
Posts: 1,368
Hi Guys,
I haven't posted in some time. I am having pain in my groins when I lift my legs to put on or take off my jeans or pants etc. Is this the start of hip pain?

Janet

jpinperth #501239 03/09/14 01:33 AM
Joined: Dec 2008
Posts: 5,231
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Posts: 5,231
Yes, Janet. My early hip pain was on the outside - my bursae were inflamed. When I began to experience pain deep in my groin, it was the start of the erosion of the hip joints. I'm sorry to hear you are experiencing this. I am just recovering from my first hip replacement.


Wendy

Rheumatoid Arthritis
Methotrexate, Celebrex, Plaquenil
jpinperth #501245 03/09/14 06:12 AM
Joined: Mar 2012
Posts: 751
Magical_AS_Kicker
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Magical_AS_Kicker
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Posts: 751
It could also be a cyst. I get an ovarian cyst on occasion which also creates groin pains for a week or two when they come on. I have never gone to the trouble to have them removed, as they come and go and are benign in many women.

I happen to be feeling one this week, and only experience them once or twice a year, but definitely feel it in the groin, and it is a different pain than AS related hip/pelvis pain for me.

http://www.livestrong.com/article/391477-acute-pain-during-leg-raises-ovarian-cysts/

http://ovariancystpainremedies.org/ovarian-cyst-groin-pain/


I'm now a KICK AS (and Kick IBD) success story!! After going low starch Paleo to heal my gut, I can now eat nearly all starches, grains & foods without inflammation, flare-ups, or pain. I used a modified SCD diet approach (minus dairy! plus cacao ♥). Cheers to healing & thriving again! I blog at http://www.forestandfauna.com/about/
jpinperth #501253 03/09/14 02:26 PM
Joined: Jan 2008
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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Nonpitting edema gave me pain there, but mainly after not moving around for awhile, when I'd first start to take a few steps. After getting moving, it subsided somewhat.

This was when I first learned what non pitting edema was and that the vioxx was causing it. Stopped the vioxx and the groin pain along with the foot pain disappeared.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
jpinperth #501281 03/10/14 02:29 PM
Joined: Oct 2013
Posts: 2
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BJR Offline
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Joined: Oct 2013
Posts: 2
I have the same exact thing! It is getting worse and worse. It started about a month ago. I have a very hard time walking. Especially in the long halls at work- I am a substitute teacher, on my feet most of the day in Kindergarten. My rheumatologist has ordered a cortisone shot in my S-1 joint on the side that is worse. I was thinking it was my S-1 from research I have done, didn't even think about my hips.

On Naproxen RX strength, 2X/day, was on Humira, then Enbrel, and my rheumatologist just took me off of Enbrel saying it's not making enough of a difference to warrant the side effects. VERY DISCOURAGED =(

Last edited by BJR; 03/10/14 02:33 PM.
jpinperth #501284 03/10/14 05:05 PM
Joined: Nov 2002
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Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
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I have a lot of groin pain and also the pain on the outside. I have been trying to ignore it. frown

Wendy, good to see you posting.


[Linked Image]

Possi
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RUN WHEN YOU CAN,
WALK IF YOU HAVE TO,
CRAWL IF YOU MUST,
JUST NEVER EVER GIVE UP!



"A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS."

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WendyR #501294 03/10/14 09:02 PM
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Originally Posted By: WendyR
Yes, Janet. My early hip pain was on the outside - my bursae were inflamed. When I began to experience pain deep in my groin, it was the start of the erosion of the hip joints.


This is a lot how my SI pain felt... I will add when at its worst it felt like someone took my SI out of the joint and jammed it back in there incorrectly and I had a cloud of inflammation to live with that radiated all around the joint.

I would nearly collapse on the right leg at times pain was so unbearable. In mornings had to try and roll out of bed and crawl to shower and turn on hot water from my knees to eventually make it feel better at times. I found steps and sleeping on that hip made it much worse... also the wrong kind of chair.

I do not miss those days.

Tim


AS may win some battles, but I will win the war.

KONK - Keep ON Kicking
Dotyisle #501324 03/11/14 01:20 PM
Joined: Dec 2003
Posts: 1,368
Bronze_AS_Kicker
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Bronze_AS_Kicker
Joined: Dec 2003
Posts: 1,368
Hi

It is on both sides, and it isn't a cyst or pitting edema. I do know it is a concern. I am glad your doing well Wendy. I think down the road it will be hip replacements for me. I do ok just can't get the darn jeans on. It doesn't help that I have gained weight from meds I take

Take Care,
Janet

jpinperth #501326 03/11/14 02:13 PM
Joined: Nov 2001
Posts: 18,187
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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Janet, before I read these responses, I would have jumped to the hips. Now, I'm not so sure. Not sure what to say I hope it is, but I hope it isn't too horrid.

Love and warm hugs,


Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"

jpinperth #501352 03/12/14 03:47 PM
Joined: Jan 2008
Posts: 21,346
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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Can I ask you when it hurts most, least? Things that make it better? worse?

I see that you said it wasn't pitting edema? have you ruled out nonpitting edema? I rarely had pitting edema, and the nonpitting edema was very insidious.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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