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Joined: Aug 2012
Posts: 11
New_Member
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OP
New_Member
Joined: Aug 2012
Posts: 11 |
I wanted to let everyone know about my recent success with bringing my spondylitis into total remission for 6 months now. I'm using two products 1x tablet daily of both: 1. B-infantis (Bifidobacterium infantis 35624) This reduced symptoms by about 50%. http://www.aligngi.com/probiotic2. Lactoferrin This in conjunction with B-Infantis has brought a total remission for 6 months now. http://en.wikipedia.org/wiki/Lactoferrinhttp://www.amazon.com/Jarrow-Formulas-Lactoferrin-250mg-Capsules/dp/B0013OQGBY(I drink it with cold water, usually after a meal, as the cold apparently helps the bacteria growth, and no hot drinks or hot food for an hour after taking either). For the past 3 years before I was getting swelling of my ankle, pain in my back, shoulder, knee and eye problems, so I am pretty excited to have reclaimed my life. I still watch my diet but not as strictly, as if I eat too much stuff that triggers mild symptoms (wheat, sugar, cheap oils seem to be main culprits). If I stop the treatment then the symptoms tend to return within 3 days. So I guess I have some persistent pathogenic bacteria thats population is decreased by taking these? PS. I'm in no way affiliated with either company, I just wanted to share my story in the hopes of better understanding my condition and possibly helping others.
Last edited by Rupy; 08/17/14 04:30 AM.
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Joined: Feb 2011
Posts: 238
Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
Joined: Feb 2011
Posts: 238 |
Out of curiosity, are you taking these two products at the same time, or staggered?
Seems they should be taken with some time in between...
Cheers
Kristine
B27+, 2nd Rheumy: 'inflammatory backpain'.
IBS + SI/lumbar/thoracic/cervical/knee/elbow stiffness & pain.
Managing inflammation very well with diet since Jan 2011.
Slow but consistent reduction in symptoms year by year.
Haven't seen a physician in years.
Took LDN (4.5mg) between 2013-2015, 2018-2019.
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Joined: Jul 2001
Posts: 3,334
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Joined: Jul 2001
Posts: 3,334 |
Hi Rupy. When I saw you mentioning Align it rang a few bells from a few years ago so I went out and did a search: Class Action Lawsuit They were advertising to the general public when their only study targeted people with IBS specifically. Then this sort of update: "Procter & Gamble claims in its advertising, including the packaging for Align, that these health benefits result because 'Only Align Contains Bifantis®, a Unique, Patented Probiotic,' that will 'restore your natural balance and bring peace to your digestive system.' Procter & Gamble has no support for these claims, even though it states that it does, going so far as to claim it has clinical proof. Procter & Gamble's representations are false, misleading and reasonably likely to deceive the public," the complaint states.
"Prominently placed on its product packaging and in its other advertisements, Procter & Gamble stated and continues to state that Align contains the unique and patented probiotic bacteria 'Bifantis®.' Procter & Gamble advertises and continues to advertise that 'Align is different because only Align contained Bifantis, a patented probiotic strain,' that 'brings peace to your digestive system.' For marketing its Align product, Procter & Gamble uses its trademarked phrase, 'Great Digestion Through Science.'
"In truth, the ingredient matrix found in Align has never been substantiated, clinically or otherwise, and Procter & Gamble has no legitimate basis to make these claims. In fact, the only purported clinical trial that Procter & Gamble discusses on its website concerns the effects of Bifantis in treating symptoms of inflammatory bowel disease ('IBS'), rather than the general population, to whom the advertisements are targeted. Even then, the study concludes that '[n]o statistically significant differences between [placebo and Bifantis] groups were observed at any time-point' relating to daily IBS symptom assessments. Results from this Procter & Gamble funded study are not published in a peer-reviewed scientific journal.
"Two of the other primary studies relied upon by Procter & Gamble as scientific proof - O'Mabony et al. 2005 and Whorwell et al. 2006 - fall far short of substantiating the Align marketing claims. Both are heavily flawed." (Brackets and parentheses in complaint.) 1. This is the Whorwell Study: http://www.ncbi.nlm.nih.gov/pubmed/16863564 2. Thia is the O'Mahony study: http://www.ncbi.nlm.nih.gov/pubmed/15765388
Last edited by Timo; 08/18/14 02:19 AM.
Timo 
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
How did you decide on these two?
I was taking align and culterelle daily.
Thought I'd try something different, so now taking vitamin shoppe's ultimate 10.
Not sure I see much difference between the two protocols.
it does seem to help that I take probiotics. But Humira helps the most.
Hadn't thought about taking them with cold water and no hot food or drink after....interesting.
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Aug 2012
Posts: 11
New_Member
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OP
New_Member
Joined: Aug 2012
Posts: 11 |
Thanks for the info guys.
I take the 2 items together.
There seems to be very little downside to both, so its worth giving a bash?
Please post your results if you do decide to try them, I'd be very interested to see if this works for anyone else.
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
Thanks for the info guys.
I take the 2 items together.
There seems to be very little downside to both, so its worth giving a bash?
Please post your results if you do decide to try them, I'd be very interested to see if this works for anyone else. Fine, but could you please answer my question that I posed above:
How did you decide on these two probiotics specifically?
There are a lot of similar bifido bacteria and lactobacilli and others to consider,
so why these two specifically?Did you find research to decide on these two? Did you experiment and find these two to be the best? Other?
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Aug 2012
Posts: 184
First_Degree_AS_Kicker
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First_Degree_AS_Kicker
Joined: Aug 2012
Posts: 184 |
I always trust a forum poster who claims remission through certain products and only has 4 or 5 total posts... (detect the sarcam?)
Rupy, if you're being honest, than congratulations. But I think most of us are skeptical of these types of posts.
Mike / 35yo / HLA-B27+ / diagnosed with AS march 2012 / Dermatographic Urticaria since 2017
FODMAP diet, Enbrel, Meloxicam, Tramadol PRN, Xolair for chronic hives.
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Joined: Aug 2012
Posts: 11
New_Member
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OP
New_Member
Joined: Aug 2012
Posts: 11 |
> How did you decide on these two probiotics specifically?
> so why these two specifically?
I tried tons of different ones, basically just trial and error.
> There are a lot of similar bifido bacteria and lactobacilli and others to consider,
Yeah I tried those, but they didn't seem to be as effective, and some not at all.
@an0thermike: I've been on the forum for years I just never really posted much. I don't really care if you believe me or not, i just posted this in the hopes that it might help someone. I don't gain in anyway from this. I'm not affiliated with these companies in any way. So take it/leave it.
I would be very interested to hear if this helps anyone else though, as theres a small chance that we're onto something here.
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Joined: Mar 2002
Posts: 9,552 Likes: 10
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Joined: Mar 2002
Posts: 9,552 Likes: 10 |
Thanks for that link...very interesting. Tim
AS may win some battles, but I will win the war.
KONK - Keep ON Kicking
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