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#516223 12/13/16 03:39 AM
Joined: Dec 2008
Posts: 5,231
WendyR Offline OP
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Joined: Dec 2008
Posts: 5,231
Just recovering from trigeminal neuralgia which appeared to be triggered by an autoimmune response to a virus. So sick for over a month and in and out of the hospital.

Why is it our immune systems can make our lives so challenging?


Wendy

Rheumatoid Arthritis
Methotrexate, Celebrex, Plaquenil
Joined: Sep 2001
Posts: 967
Superior_AS_Kicker
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Superior_AS_Kicker
Joined: Sep 2001
Posts: 967
Face pain in the Jaw can be devastating. Good luck on overcoming this adversity.

Joined: Jan 2002
Posts: 1,014
C
Iron_AS_Kicker
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C
Joined: Jan 2002
Posts: 1,014
Hi Wendy,
I hope you are feeling better! What a nightmare! I just wanted to tell you that I still occasionally deal with trigeminal neuralgia due to a case of shingles I had about 8-9 years ago. It really sucks! I was on meds for the nerve pain for quite some time. Once in a while I still feel the pain.
I am so sorry you had to go through that. I don't have a true answer for your question about our immune systems except to agree with what you said. Our immune systems CAN make our lives so challenging! So we fight. Each and every day and we don't give up. And we come here and support each other through it all. That's the best way I have found to deal with it! Take care, hun!

Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865
Oh Wendy I'm so sorry! (((hugs)))


ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!

Joined: Apr 2009
Posts: 719
Likes: 1
M
Decorated_AS_Kicker
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Decorated_AS_Kicker
M
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Wow I am glad you are doing better.
ETTE
Darrel

Joined: Dec 2008
Posts: 5,231
WendyR Offline OP
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Joined: Dec 2008
Posts: 5,231
Thanks everyone. I had some pretty weird symptoms beside the pain - including a bitter taste when I tried to eat fruit and a few other foods. That still hasn't gone away so I'm still on a pretty bland diet.

The worst symptom was unremitting nausea and dizziness. Couldn't stand up, couldn't even read. Ugh!

Now I'm mostly dealing with fatigue and low white blood cell count which appear to be the result of my body trying to fight the inflammation. But I'm finally back at work.


Wendy

Rheumatoid Arthritis
Methotrexate, Celebrex, Plaquenil
Joined: Sep 2001
Posts: 8,397
L
Lon Offline
Very_Addicted_to_AS_Kickin
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L
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Posts: 8,397
Wendy - I hope that you are better today?
No one understands our pains....but the family here.
You are a strong trooper, I hope that you were cared for and remember that we love you!

Merry Christmas my friend!

love
Lon

Joined: Jan 2004
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Very_Addicted_to_AS_Kickin
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Ouch - could it be possible to be related to teeth ? Implants and also root canal fillings can lead to hidden bacterial infection. Check out Cavitation. Meanwhile, this would back up such a problem :-

Researchers add to evidence that common bacterial cause of gum disease may drive rheumatoid arthritis
Posted: 14 Dec 2016 11:56 AM PST
New evidence suggests that a bacterium known to cause chronic inflammatory gum infections also triggers the inflammatory “autoimmune” response characteristic of chronic, joint-destroying rheumatoid arthritis (RA). The new findings have important implications for prevention and treatment of RA, say the researchers.
https://www.sciencedaily.com/releases/2016/12/161214145602.htm

Hope the problem can be resolved Wendy - trigeminal is horrib le. Positive thoughts.

Happy Christmas- take care -

Molly C


MollyC1i - Riding OutAS
Joined: Dec 2008
Posts: 5,231
WendyR Offline OP
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Joined: Dec 2008
Posts: 5,231
Thank you, Lon! Merry Christmas to you, also. And to your family.


Wendy

Rheumatoid Arthritis
Methotrexate, Celebrex, Plaquenil
Joined: Dec 2008
Posts: 5,231
WendyR Offline OP
OP Offline
Joined: Dec 2008
Posts: 5,231
Interesting research. Thank you, Molly.

In the meantime, I am steadily improving.

Merry Christmas to you, also.


Wendy

Rheumatoid Arthritis
Methotrexate, Celebrex, Plaquenil
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