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Joined: Sep 2009
Posts: 1,313
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Bronze_AS_Kicker
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Bronze_AS_Kicker
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How I wish there were others on this website! This evening I was washing my face and looked in the mirror. It is back again! My left eye's white part is Red again and my eye feels kinda prickly.

I have a call into my doctor for med refills and will tell him about my eye. Last time my eye was this way I was prescribed steroid eye drops and told I had Uveitis.

I think I have it again but then I was told last month I have Ankylosing Spondylitis instead of Spondylosis based on my having positive HLA-B27.

Wish you would all come back and bring some life to this wonderful website filled with mega Ankylosing information and good old fashioned camaraderie! The website's Security issue has been resolved and you should never see the insecure website warning again.

Thanks for reading and I do hope to begin reading your posts again. - Angie -


- Carpal Tunnel in BOTH hands
- Depression (MDD) Major Depressive Disorder
- Pituitary Adenoma
- Scoliosis
- Spinal Arthritis with bone spurs on spine
- Multiple Scoliosis diagnosed
- Herniating spinal disc
- HLAB27+
- Final diagnosis: Mild lumbar spondylosis

Previously told Mechanical Back 'Issues'. Hate this term!
Joined: Nov 2001
Posts: 18,156
Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,156
Likes: 6
Angie, that so sucks! LincInNY got it, too recently. How's it feeling now?


Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"

Joined: Sep 2009
Posts: 1,313
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Bronze_AS_Kicker
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Bronze_AS_Kicker
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Posts: 1,313
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Hi, Inanna:

My eye keeps getting red and then it goes away. Have to be careful with the timing of the steroid eyedrops as they are mixing up my Aubagio blood tests.

I was also diagnosed with Fatty Liver (week ago!) and have to begin to eat much better. I do not want it getting worse but better! I am starting the Mediterranean Diet as I feel it really suits my diet. Currently I eat almost zero vegetables, barely touch red meat (this is good!) but also have to just eat a balanced diet. I am very heavy on coffee and chocolate.

And I am now waiting for carpal tunnel surgery on my left hand. (diagnosed Thursday) Oh my goodness was that test Uber painful! But I am glad I had it done so I can now get my hand taken care of.

I want to thank you for sending people over to KickAS, too. smile
- Angie -


- Carpal Tunnel in BOTH hands
- Depression (MDD) Major Depressive Disorder
- Pituitary Adenoma
- Scoliosis
- Spinal Arthritis with bone spurs on spine
- Multiple Scoliosis diagnosed
- Herniating spinal disc
- HLAB27+
- Final diagnosis: Mild lumbar spondylosis

Previously told Mechanical Back 'Issues'. Hate this term!
Joined: Nov 2001
Posts: 18,156
Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,156
Likes: 6
I am sorry to hear about the fatty liver. Look into Dr Meghan Rossi. She did her PHD on the use of diet in helping Chronic Kidney Disease and she makes a lot of sense. She has a clinic in London and does research with Guys and St Thomas Hospital and with Kings College London. Brian bought me one of her books one time. I like the way she talks about things. Not specific to Fatty Liver, but might help you get your feet under when it comes to switching things up.

I am sorry that your eye keeps flaring. Trying to wean off the drops must be difficult given the blood tests. Does your ophthalmologist have any suggestions?

I hope people keep coming back to check in, Angie. KA was such an important and helpful part of our lives.

Love and LIght.


Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"

Joined: Sep 2009
Posts: 1,313
Likes: 2
Bronze_AS_Kicker
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Bronze_AS_Kicker
Joined: Sep 2009
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I go to see my optometrist next week. Can't wait to get the eye looked at. I keep getting a 'slicing' feeling at times when I look to the side. Strange feeling.

Thank you for your suggestions for Dr. Rossi, Kat. It is appreciated smile. I am currently waiting to receive a phone call from a dietician regarding the Fatty Liver.

Have begun adding more frozen veggies to my diet. So tough to avoid chocolate, though!

So very sad KickAS is running 100%; it is secured 100% and hardly anyone is here to enjoy it.

One day at a time as they say perhaps they will come back.
Fingers are crossed.

- Angie -

Last edited by Magician; 03/07/22 02:14 PM. Reason: correction

- Carpal Tunnel in BOTH hands
- Depression (MDD) Major Depressive Disorder
- Pituitary Adenoma
- Scoliosis
- Spinal Arthritis with bone spurs on spine
- Multiple Scoliosis diagnosed
- Herniating spinal disc
- HLAB27+
- Final diagnosis: Mild lumbar spondylosis

Previously told Mechanical Back 'Issues'. Hate this term!
Joined: Nov 2001
Posts: 18,156
Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,156
Likes: 6
Optometrist or ophthalmologist? Slicing in the eye is bad. Painful doesn't come close.

See, I've decided chocolate is medicinal and, therefore, doesn't form any type of food group that should be avoixoxoded. lol I also know that's a luxury not everyone has.

I hope people do start to come back, Angie. You've worked so hard on it and it's a shame people aren't checking in. Fingers definitely crossed!

Keep me posted on your eye, OK?

Love and light,


Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"

Joined: Sep 2009
Posts: 1,313
Likes: 2
Bronze_AS_Kicker
OP Offline
Bronze_AS_Kicker
Joined: Sep 2009
Posts: 1,313
Likes: 2
Hi Inanna! smile

Yeah it is not fun at all. The entire eye goes red, then the eye lids and the slicing feeling begins. I have had 2 people tell me I just have pink eye. I had pink eye in Grade 12 and this definitely is not it. There is no stickiness; just that slicing feeling and eye redness. Some days it kinda lightens up but a few hours later it is as red as ever.

It is an ophthalmologist I am seeing, Kat and I am hoping he will be able to help me stop this eye redness. My regular doctor is wanting to discuss Naproxen, too.

I continue to have hope other members will at least drop by. All posts made are still here for reading and reference. I know there were a few troublemakers for lack of a better way of putting it (sorry!) but the few should not mean the end of the whole.

KickAS was created to be a supportive community. Now it needs its former Forum Members to keep dropping in and just talk. I have been reading random posts and remembering the very vibrant community and genuinely missing it.

Now Security is running at 100% and KickAS' entire system has been updated.

Inanna, I am hopelessly addicted to chocolate. Can't live without it; grateful for Lactaid, too. lol

Have a good and very safe night! smile
- Angie -


- Carpal Tunnel in BOTH hands
- Depression (MDD) Major Depressive Disorder
- Pituitary Adenoma
- Scoliosis
- Spinal Arthritis with bone spurs on spine
- Multiple Scoliosis diagnosed
- Herniating spinal disc
- HLAB27+
- Final diagnosis: Mild lumbar spondylosis

Previously told Mechanical Back 'Issues'. Hate this term!
Joined: Sep 2009
Posts: 1,313
Likes: 2
Bronze_AS_Kicker
OP Offline
Bronze_AS_Kicker
Joined: Sep 2009
Posts: 1,313
Likes: 2
Hello Busy Community! Well I guess it is usually just me but I will still update whomever happens to wander by. lol

Saw my Optometrist yesterday. Had many new Fan-Dangled eye tests done. Once again he confirmed it is Uveitis.

He wanted me to go to a specialist in the Big City to the East but changed his mind when I informed him the clinic where the specialist was had been changed into a regular hospital.

Steroid eye drops again for this gal. Gotta love them for healing my baby blues. smile

Thank you for reading.

- Just a Little Ol' Magic -


- Carpal Tunnel in BOTH hands
- Depression (MDD) Major Depressive Disorder
- Pituitary Adenoma
- Scoliosis
- Spinal Arthritis with bone spurs on spine
- Multiple Scoliosis diagnosed
- Herniating spinal disc
- HLAB27+
- Final diagnosis: Mild lumbar spondylosis

Previously told Mechanical Back 'Issues'. Hate this term!
Joined: Nov 2001
Posts: 18,156
Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,156
Likes: 6
Angie, I'm so glad you got the Uveitis properly diagnosed. Has he got you on dilation drops to keep the muscle from working? I used to have to wear an eye patch when they gave me those.

How's the eye feeling, now?

Love and light.


Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"

Joined: Sep 2009
Posts: 1,313
Likes: 2
Bronze_AS_Kicker
OP Offline
Bronze_AS_Kicker
Joined: Sep 2009
Posts: 1,313
Likes: 2
Hello Kat:

I already had a prescription for steroid eye drops which I have begun using. Not sure how long it will take this time but I do have 6 days left to take them. smile

I was supposed to be going home to Mom's but Manitoba is getting a rotten Winter Storm and I was unable to go but we have made plans for me to go in a couple weeks to visit.

I wish you a very Happy Easter and much chocolate eggs.
LOL

Angie


- Carpal Tunnel in BOTH hands
- Depression (MDD) Major Depressive Disorder
- Pituitary Adenoma
- Scoliosis
- Spinal Arthritis with bone spurs on spine
- Multiple Scoliosis diagnosed
- Herniating spinal disc
- HLAB27+
- Final diagnosis: Mild lumbar spondylosis

Previously told Mechanical Back 'Issues'. Hate this term!
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