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It's my first post on Kickas, I'm 29, M, India. Thanks Johan to introduce this forum to me, i see lots pf AS kickers here who relates to me and understand me what am going through as family, relative no one understand what AS is and this is very rare disease where i live.
Here's my story.....
Got lower back pain suddenly in 2013 when i was in my post graduation, the pain was too much that i can't move or walk a step...sharp pain in lower back to thighs, calves muscles...got some tests MRI but nothing shows up..my pain reduced by nsaids and become normal again but i still feel a lower back pain which was manageable till 2016....got my tests but never got any issues in spine...2017 again back with the same pain and bed ridden for 10 days, some Aryuvedic medicine (Indian) helps me to get up and back to normal again...i was doing good again daily sports gym activities etc.. without any meds.
2019 when the condition got work i started limbing all the time lower back + hip pain + uveitis ( diagnosed by an eye doctor tht i have AS)....after that in 2020 got completed bed ridden because of left hip pain radiates to full leg, got MRI hip gap reduced, ball shape changes but no fusion. Movement restriction too much with many physiotherapy, accupressure and lots of different treatment i got to walk again after 8 months bed ridden. But i still limb a lot from left leg some days it's good but mostly worse have knee pain and swelling from thigh area to knee which i think is Hip Bursitis as doctor didn't give me what's exactly is but my symptoms are currently of bursitis. My hip gap reduced but there is no much pain in hip joint.
I used to bear all my body weight to right leg because of it i got Hip tilt my left leg which is in pain is longer thn right leg becoz of the Tilt, which is now very awkward to walk like this and it pains all the time. Am currently taking Saaz, tofashine & indocap daily.
PLS Help me and guide me how to get rid of the Hip Bursitis because this medicine and daily physiotherapy is not helping me at all....Is hip tilt can be normal again? Will my leg lengths will be normal again? So many question.......ðŸ˜¥ðŸ˜¥ðŸ˜¥ðŸ˜¥
Sony, I am so sorry you haven't heard back from anyone on this, yet. I'm no help with hip bursitis, but I do have very tight ileotibial tendon (it goes from hip to knee on the outside of the thigh) that causes pain in my hip, knee and thigh. Sleep is very difficult when it is having problems. This is a very difficult area to stretch, but I do have one thing that helps.
You know those foam swimming noodles that children use in pools? If you put one on the floor and lie across it on your side, on the hip that is sore, then slowly, using your upper body strength, pull yourself along the floor so that the noodle rolls under the thigh to the knee and then roll back so the noodle is under your hip again. It is very painful, so keep breathing, and very effective. This link has a picture and probably describes it better than me. Thought it might be helpful.
Yep - there isn't good cure for bursitis, except for DMSO. It was a miracle cure for serious bursitis in my shoulder. Dr Weil writes about it. You want to be sure to read plenty about DMSO before you acquire it and use it. You don't want it to come in contact with anything unintended. I could go shirtless for awhile when putting it on my shoulder before covering up with a cotton shirt. If it's truly bursitis, you can count on it helping. Reply back because it could be over in a couple of weeks from when you start. I assume an MRI indicated bursitis.
I've found that astaxanthin is excellent for uveitis. It is safe but expensive. I otherwise discovered ibuprofen was helping during the period I was taking it daily for other reasons, but very thankfully I don't have to do that anymore. The uveitis was causing periods of dry eyes that couldn't focus.
Autoimmune diseases like AS affect the synovial fluid which lubricates and nourishes the cartilage in your knees. It can cause inflammation, but that wasn't my problem at all. Walking normally forces the synovial fluid into the cartilage, but it takes a little running for me. I like taking hyaluronic acid too. That said, you described another cause for your knee pain, and indeed there are several things that can cause knee pain, even assuming there are no strains or tears.
Getting the AS under control should help the back, along with the right amount of the right exercise.