Kickas.org Forums Treatments, Drugs and Alternatives NSD and diet-related; Confessions of a semi-cynic

After reading some Ebringer and other papers, i posted a thread on prevalence of AS in Haida Indians and Innuit - would like more response to that as there might be ethnic info and treatment documented or available. I've ordered the major reference.
After many remissions, i'm still searching, but basically LSD, occaisional fasting, followed by antibiotics and take a lot of enzymes to try to break down errant starch. No perfect solution so far for me but, unfortunately, i seem to have sensitised myself - when i break my LSD i get AAU. At least i know i'm on the right track.
As to whether or not a complete answer is available, i'd have to agree that it will be individual answers. Come to think of it, i had remissions most times i went sailing/cruising.
Throw in stress/no stress as a factor!

It's a [####] sailing without pasta and rice.

But the fishing is good.

Ted

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Even though AS is highly prevalent among Eskimos, don't they go into remission right from onset of the disease? They subsist almost entirely on raw seal meat.

Paul Diss-Holland

Coming from a background of ignorance here.
Do they really go straight into remission? Has it been documented?
How could AS be considered "a common, almost endemic disease" among Innuit if they did/do not exhibit symptoms?
Were the highly positive population from traditionally living people or town/fringe-dwellers?
I'm a long way away from there, but is 100% flesh diet de rigeur today?

I'm just searching to see if info/statistics among such a high prevelance group exists.
On the Alternatives list i asked for possible traditional treatments by Haida and Athabascans - or did/do they use the seal meat diet?
Any pointers appreciated.

Ted

Ted...i know for a fact that while INNUIT peoples do live primarily off of seal meat (and they use the whole thing, even the eyeballs, uncooked)..they now all eat things like kraft dinner too...granted 40 years ago that was not the case...and i personnaly think thier all meat diet would contribute greatly to the remission...another point about the innuit is that they live in very cold yet mostly arid conditions, which could also contribut to thier ability to cope well.....as far as the haida diet, i would assume that thier diet was (before european introduction) essentially gluten-free, but consists mostly of fish (not raw meat, but smoked fish)......hope this helps....

from a first-nations respecting canadian....marco

dance like nobody's watchin....

Ted,

some months ago on the main forum we were discussing these matters concerning prevalence of HLA B27 and AS among the circumpolar ethnic populations and Evelyn posted some links from PubMed where researchers had looked at the question. (search the main forum with circumpolar) But it seemed apparent that the researchers were only really able to express opinions and had not really been able to do rigorous dietary studies, nor had they always distinguished adequately between the different spondyloarthropathies. But if a clinical trial could be done for the diet the eskimos would make good subjects, as traditionally they have been used to high protien and low starch diets and would probably be more cooperative when told to leave the pizzas alone. In retrospect perhaps Ebringer should have gone to live in an igloo for a while - in the interests of science of course!



Rule 6.7. (c) ... It is forbidden to punch it forcibly, to pick it up or to knock it over. Improper clock handling shall be penalised in accordance with Article 13.4.

Paul,

as someone who attended the rainmaker's clinical gatherings at the Middlesex / UCLH hospitals for some 25 years I have to report they were pretty dry affairs. The only time he used to stomp around was when more NHS budgetary cuts made it even more difficult for him to find the resources to help his patients. He did try to get the money for a prescriptive controlled clinical trial of the diet but the Arthritis & Rheumatism Council wouldn't stump up the readies. But at least the rain dance has worked for me!

Rule 6.7. (c) ... It is forbidden to punch it forcibly, to pick it up or to knock it over. Improper clock handling shall be penalised in accordance with Article 13.4.

From one Tim to another.Hi ,sadly i'm like Paul and didn't get any relief from NSD .After nearly a year on a virtually starch free diet I then binged on all things ,baked and fried and no change.I was and am confused and frustrated with nothing to show after a year on the diet. Another strange thing was that my ESR and CRP only went up as the year progressed?I am now on sulphasalazine EN . with some relief.
After looking at John's chart of one of Ebringers patients,i noticed that even though the ESR went down over time ,there were huge short increases.Maybe my inflammation was too high for any result ?.
Should I try again now ? regards .Tim Gould.

Hi Tim,

That would be a personal decision for you. Diet does work for me from a pain stand point, however, struggling with energy again. So personally I may need to add some starch back in to see what happens.

I cut out my carrot juice that really helped with energy since liver still toxic and I believe it is due to Vitamin A.

Started the diet after dropped from the sulfasalazine last Easter, had been on that medication for 6 years with good results.

Take care and good luck with the decision.

Tim

Tim, you say you started the diet after stopping the sulfa - was that because of liver toxicity? Both act to reduce the klebs, and can work well together if the sulfa can be tolerated. Regarding the carrots, I once read about a guy who used to buy carrot juice by the gallon from his local health food shop. He turned yellow and dropped dead!

Rule 6.7. (c) ... It is forbidden to punch it forcibly, to pick it up or to knock it over. Improper clock handling shall be penalised in accordance with Article 13.4.