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#77071 09/17/02 10:03 PM
Joined: Sep 2002
Posts: 2
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Joined: Sep 2002
Posts: 2
Hi all,
My first "new post".Have been receiving "INFLIXIMAB" infusions for the past eleven months and today, because of (a) continued disappointment with the drug and (b) harsh side-effects, I cancelled future infusions.Would like to hear from somebody who has been in the same boat or somebody who can suggest any ideas as to where do I go from here?


richard01 #77072 09/20/02 07:04 PM
Joined: Mar 2002
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Posts: 9,552
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Hi Richard,

Have you considered dietery changes? Can check out the No Starch Diet forum (NSD). Quite a few people experience improvements with watching how much starch they eat. I personally could eliminate my pain with No Starch Diet. But for some reason could not maintain energy, so I am Low Starch Diet (LSD).... only one meal with starch and very small amount.

My pain is manageable with no over the counter drugs, but do take some herbs.

Off medications due to liver. Prior, azulfadine worked wonders for me.

Take care,

Tim



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