Hey all,

Just thought I would share with you the results of my HLA test that I got back today. It came back negative.

So assuming I do have the dreaded AS.. which I'm fairly confident of.. I'm amongst a smalll minority of people in the world... or am I?

I also finally got back the report from the rheumy who said there is no evidence he can find yet that would indicate AS.. much as I suspected.

Basically he said none of my symptoms match up to any of the established criteria. They have some things in common with fibromyalgia but i don't match up to that either. So basically I'm on my own until sometime goes off in my body it seems.

The most accurate observation he made in his report was that I am "a serious and worried fellow." Would you blame me?

It looks like I'm headed down a long path in the coming weeks, months and years. And to be honest, I don't care for a diagnosis any time soon. If I don't have a diagnosis then i technically have nothing wrong with me.. haha. No insurance worries, nothing to tell an employer before they choose to hire you... etc.

And I don't really want any dmards or anti-tnf stuff. I want to work with my immune system, not against it. Not knocking anyone who uses them..to each their own. That may be naive of me but I just don't see it as something for me a this point.

I'm venting a bit here because i'm a bit also hurting today. I look forward to hearing your insights.

I hope you are all doing very well.

Namaste,

Colin

"Only to the extent that we expose ourselves over and over to annihilation, can that which is indestructible be found in us."

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