Welcome to Diagnosis Limbo World, my serious and worried friend. The natives are all neurotic here, but try not to be afraid of them as they are actually quite friendly and welcoming.
In his office notes from my last visit, the rheumy noted that I seemed anxious. Duh. He'd be anxious too if every few weeks he woke up with pain in a new place while none of the old places got better.
Have you looked at the established criteria for AS as well as those for Undif Spondy? Do you think you fit the criteria? Perhaps you've mentioned it and I've forgotten, but have you had an MRI of you SI joint? An MRI would show sacroilitis sooner than an X ray.
I wish you the best, diagnosis or not, and hope you can find a treatment which works for you.
Namaste,
Karen the Anxious
