Hey Everybody:
As someone who has kept out of this, but doesn't like seeing this conflict develop
I certainly don't have the degree of physical ailments that a lot of you do, don't have the fusing, don't have the lack of movement, but I sure have empathy for those of you who do
I was undiagnosed for 20 years, and can tell you that not knowing is its own brand of hell
It makes you mad at yourself for not finding the answers, even when you are doing productive work at your job, doing the things that society rewards you for, you can't help thinking that you should just stop all that and devote all your resources to looking for an answer. So that you won't look back on your life later, and wish you had tried harder, and always wonder. So of course, if you do make that decision to dedicate yourself to that, and then find that the medical world still fails to give you what you need, the frustration just compounds, and can easily turn into panic-
Now I have a little piece of paper that says I have Reactive Arthritis, that piece of paper hasn't done anything to decrease the pain, but it does gives me a few more places to explore, I could probably try Remicade if I decide to. I am very unsure if the diagnosis is correct, though, because I don't have the types of digestive disorders that seem to typically go with that
Right now I'm going to explore something I've read about, pelvic floor disorder (levator syndrome)
I sure hope that if I were to be lucky enough to find out that what I suffer from was not AS-related, and if it turns out I was mis-diagnosed, that I wouldn't be any less welcome on this forum, though, and could stay here and talk about it with you all, I'd hope I wouldn't have to leave and look for a KickLevator board...
