Oh my goodness. That is my worst fear. I have the disease and I worry for my 3 kids ages 11,10 and 8 (a son).
If it were me, I would try him on the no starch diet while you wait for your appointment. It would be unimaginably hard on my son who lives on bread (lol) but so worth it if he felt good again.
I made the Elana's Pantry website recipe called "breakfast bars" and my kids really liked it. Sometimes something sweet makes life seem a little more "normal."
Good luck. I will be thinking of you and your son in my prayers.
-Donette
