Hi Kat, Thanks, it's good to be back. It was very scary then and also afterwards for several days. I have an appointment June 23rd with the rheumy, so we'll talk about it then. Meanwhile, the nurse from the infusion center called yesterday to re-schedule my next infusion. I asked her if the doc wasn't likely to pull me off the remi. She said she did't know, but the doctor that was there when it happened, wasn't real concerned about the episode. Well, maybe if it happened to her , she might be a little more concerned. What bothers me is that I was already doing a protocol for reactions and it happened anyway. She also said that Remicade was the only infusion drug available for AS, that if I switched it would have to be to injections. Enbrel, humira, and a couple of others. I wonder if they do anything for Uveitis? I know the remicade got mine under control. I really don't want to go on one of the newer ones either.
How have you been? You say the Enbrel isn't working quite as well? Are you still able to keep up your theater? TAke care . Hugs, Wanda
