Thanks Mig,
I've been on it since April '06 and my infusions are every 6 weeks. I had a surgery in '08 and it got off of schedule a bit, but not much.
Yes, the protocol has worked well all this time. I think that's why it's so upsetting to me, because it happened in spite of the protocol. Probably the reason the doctor there wasn't very disturbed by it was because she was able to get it under control. I wonder, is there some way they can tell if it happened because of antibodies to the remi? They had taken my blood at the beginning of the infusion.
I do have to say also, that they reacted very quickly and efficiently when it happened. They had a saline bag ready and dropped what they were doing as soon as I alerted them. That's comforting to know.
Take care, Wanda
