Hello,
Danny was prescribed LDN by an alternative dr for AS and MS. The doctor started him on 3.5 mgs. I asked this dr if Danny might do better starting slowly at 1.5 and working his way up to 3.5 but he said it would not be a problem.
Within a month, his neck became extremely painful and STIFF. Danny was convinced that it was Meningitis, and we rushed to the regular MD. The dr said it wasn't Meningitis and if the STIFFNESS got worse, because it was Friday at 5 o'clock, go to the ER.
I remembered in all my reading about LDN that it was possible to experience STIFFNESS.
I told him to stop the LDN and see how he felt. Within two days, all STIFFNESS was gone.
Danny waited one month and tried it again. Within 2 days, STIFFNEFF in his neck was back. So he stopped the LDN again.
He waited one more month and then he asked the alternative doctor to lower the dose to 1.5 mgs. The dr only lowered it to 2.5 mgs. After 2 days, STIFFNESS in his neck again. The alternative dr said there was no connection between LDN and his STIFFNESS!!!!?????
I called the compounding pharmacy and found out the AVICIL was the filler. It is derived from wood. The pharmacist said it was safe and shouldn't be a problem with starch. I don't know!!!!!
Any thoughts or suggestions?
Laurie
