Hrmphhhhhh!
Yeah, YOU and the other 9000+ people who have registered here don't have this same disease - in fact, it's not even a real disease, which is why there are no published articles in respected peer-reviewed medical journals or a mention of it in published medical textbooks..............
No wait, I think I am confusing AS with $*it-stirrer-itis which is possibly the disease your aunt may have - perhaps it is as yet undiagnosed.....
There are no words for this type of scenario Trish - well, none that I would be able to type without a BIG slap from our beloved leaders...
Please don't waste your limited energy resources - both emotional and physical on folks like this. You have more important things (POSITIVE things!) to direct it into.
In all seriousness though, I do think that those who have a very stubborn streak and push on regardless of the havoc that the AS tries daily to wreak do end up doing themselves quite a disservice. Although I could not imagine living my life any other way, I suspect that sometimes when we can't do stuff and other times we can ( or just need to, so do so with no heed of the fallout....) it makes it look as if maybe we are *faking it* to those who are clueless about the somewhat arbitrary day-to-day variability of this particular monster.
(I have just had a MASSIVE flair that I was unable to kick down with fasting etc, so after a month of unbearable pain and swelling I resorted to a high dose quick Pred taper.... MAN - that is some good stuff!!! All of a sudden I go from moving slowly and carefully and being tired and grumpy to being like the Eveready Bunny on SPEED! I don't bore my family with a day-to-day report of how I feel, I just 'suck it up' and push on. I should imagine though that to the untrained eye this looks a bit like somebody who is sick/sore when it suits them!)
In truth, I was just sitting here trying to figure out how I can fit a visit to the myotherapist in anytime over the next couple of weeks. By the time I go to work, care for the family and do *extra* stuff because I have an exchange student staying here ATM I'm wondering when the "me" time is gonna be squeezed in......I've had killer headaches for the past 3 weeks and physio alone is helping but not giving me the MIRACLE that I need for my oh so stiff neck! Maybe if I just wish hard enough I will wake up and my imaginary disease will have dissolved?????
