Originally Posted By: inkyfingers
In all seriousness though, I do think that those who have a very stubborn streak and push on regardless of the havoc that the AS tries daily to wreak do end up doing themselves quite a disservice. Although I could not imagine living my life any other way, I suspect that sometimes when we can't do stuff and other times we can ( or just need to, so do so with no heed of the fallout....) it makes it look as if maybe we are *faking it* to those who are clueless about the somewhat arbitrary day-to-day variability of this particular monster.


while i think you are absolutely right, it makes me think,

everyone gets sick every so often, feels miserable, and if its the flu is out for the count for a week or more.

so if people can get sick for a little while, then better, then sick again,

why can't people understand that a chronic illness could work the same way?

maybe that's the way i'll try to explain it to people in the future.

though wouldn't be surprised if some people never get it.

maybe its the constant roller coaster where people can't believe how variable things can be and how quickly and how often.

oh, i don't know......i think you're right, better to spend our precious energy on more positive endeavors! smile



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)