Thanks so much, Sue! That's very helpful to me, and I really appreciate all the details you gave. It was exactly what I was wanting to know.
Yes, I can always stop if I don't like it. My concern is more about the effects I've read about that ppl get after being on it for several years- the effects that take a long time to repair, or don't ever go away, such as liver damage or neurological damage (MS & more). Every time I'm ready to go ahead with it, it seems I read about yet another person who has had lasting damage from it. As someone who tends to get the rare & bad side effects from drugs, I look at those risks very seriously. My AS presentation is so debilitating the thought of possibly having even more pain/disability to deal with overwhelms me beyond my ability to jump in the biologics water, even though I know it also has the possibility to make my functional life possible once again.
Thanks again!
AS 30+ yrs HLA-B27 positive Crohns (20 yrs of NSAIDS controlled AS but destroyed gut) Chronic spontaneous tearing of tendons & ligaments; limited walking ability Humira, LDN, LSD, L-Glutamine, multi-vit, vit d, vit c, adjustable bed, every pain patch and/or topical analgesic known to man,  Nortriptyline for pain.
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