Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group I went to the Neurologist today

Hi all,

I am still in shock as I am writing this. I went to the Neurologist today to follow up on the Clonus. He had given me medication to help and it has. While we were there talking to him he mentioned the TWO strokes. I yelled, "TWO STROKES?!!?!". Looked over at my step-Dad thinking that Mom and he decided it wasn't right to tell me and found out that he didn't know that I had two strokes either. I had a stroke on each side of my Thalomus of the brain and they are completely shocked that I am not paralyzed. And can't believe that I am this functional at only 5 months after the two strokes. I am in complete shock still. I am 50 to 75% recovered from the stroke but still not walking yet. Things are getting better though I walked 30 feet last night with a walker. I hadn't been able to do more than stand for 3 weeks. The meds are working! I go to the Rheumy on Thurs to see what is going to be changed in that area. I am only taking a low dosage of Celebrex and Prednisone right now. I am a very lucky person! I now see why the Neurologist looked strangely at me. He said that he couldn't believe the miracle. This DR pushed for me to be taken on that lifeflight to Stanford Hospital in Northern California. He said that all the closer hospitals didn't have beds but he went to Standford and knew the DR there and got me a bed. I was not supposed to make it. He keeps making sure that I know how serious things were. I was given medications and semi-concious for the first three weeks or so after the stroke. Nothing like being told even more things while trying to get back to my old self.

Take care and hugggggggggs,
Lisa

KickAS is more than a support group...it is a family!

Lisa
You were very fortunate to have a Neuro who realized how serious
your condition was and get you to a facility set up to give you the care
you needed...

Will keep you in my thoughts and prayers that you will make a 100%
recovery...



David

Well, Lisa, I guess AS folks are just over achievers, one stroke wasn' t good enough, just for the challenge you had to have two So glad you made it through your ordeal! Take care of yourself.

((((hugs))))

Cheryl

If you can't be a good example you'll just have to serve as a horrible warning.
Jennifer Cruisie

Dogs don't want to know about every other dog you've been with

So you are now a walking miracle!

My grandfather had one stroke and didn't live through it so I am really glad to hear that you have had two and are almost walking. Just goes to show that miracles, luck and strength should never be underestimated.

I would wish you strength, but somehow I think you already have enough of your own.......sounds like you are most certainly on the right track...I hope it just gets better and better for you here on in!

Sal


Being deeply loved by someone gives you strength; while loving someone deeply gives you courage. Lao Tzu

Lord, Lisa, you don't do things by halves at all, now, do you!! I honestly don't quite know what to say. Somehow, 'congratulations' seems wrong, but right at the same time given how well you are doing. You are truly an example of what the power of the mind can do. You decided to get well, and look at you - beating all the odds! You go girl!!

Many hugs (but gentle ones so I don't knock you off your walker ),

Kat

SHOW OFF!
Look at you, ya make me look bad. Here I whine and whine about my PAIN oh the pain, and you had to go and pull this Evil Kenivel thing.
What ya gonna do for an encore, jump Snake Canyon on a scooter?
The least you could do is whine more, OK!

And maybe don't sound so $#%& chipper either.

I hope you know I am so razzing you......you kick not only AS, but CVI too, a master.
Your spirit must be oh so unique, andthere is no doubt.G -d must have great plans for you.
Congrats on making it, congrats on having so many who love and care for you., and congrats for having something so special ahead of you,

Love and happy vibes to you and yours,
Shu
AKA
Bitty Buffy
"So I will walk through the fire, for where else can I turn?"

Hi David,

I am very lucky! Thank you so much for your thoughts and prayers!

Take care and huggggggggs,

Lisa

KickAS is more than a support group...it is a family!

Hi Cheryl,

I have never thought of myself as an over-achiever but I guess I am. It has been a tough road of recovery. Two strokes and a divorce is my limit!

Take care and hugggggggs,
Lisa

KickAS is more than a support group...it is a family!

Hi Sal,

I am indeed a miracle! From what I have been hearing from all my DRs is that I am lucky to be here and to be in such good condition. I will be walking soon, it is just taking a bit of time.

Take care and hugggggggggs,

Lisa

KickAS is more than a support group...it is a family!

Oh my god Lisa!!

Wow, that is intense...whoa....and you are emailing us to boot...you rest, rest, take care, do whatever you have to do....two strokes, my god....hang in there, we're all sending you the positive vibes...

Peace
Linc

Linc O'Brien