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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: Oct 2007
Posts: 35
Member
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OP
Member
Joined: Oct 2007
Posts: 35 |
Hello:
I have just administered my first injection of enbrel, and so far so good.
I was just wondering how and when people started responding ?
The nurse estimated 2-4 weeks, and thoughts ?
Cheers
Pasch
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Joined: Feb 2002
Posts: 1,342
Bronze_AS_Kicker
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Bronze_AS_Kicker
Joined: Feb 2002
Posts: 1,342 |
Each person will react differently but that's generally pretty close. For me it was about 4 weeks or so. Been taking it now since late Feb and the results have been incredible. Just stay patient for a few weeks before passing judgement.
Glenn
"If God were small enough for your minds, He wouldn't be big enough for your needs."
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Joined: Apr 2002
Posts: 3,607
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Joined: Apr 2002
Posts: 3,607 |
Took me about a month to get decent results, and 2 months for the full effect.
How are you doing now?
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Joined: Jul 2008
Posts: 79
Apprentice_AS_Kicker
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Apprentice_AS_Kicker
Joined: Jul 2008
Posts: 79 |
I have just given myself my 4th injection and am not really feeling any effect yet, other than several bouts of dizziness. The more I read about Enbrel and possible side effects, the more I am not sure I want to stay on it.
"This is the Day the Lord has made, let us rejoice and be glad in it."
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Joined: Jul 2008
Posts: 79
Apprentice_AS_Kicker
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Apprentice_AS_Kicker
Joined: Jul 2008
Posts: 79 |
I have been on Enbrel for one month...not feeling it yet. Are you concerned with the possible side effects?
"This is the Day the Lord has made, let us rejoice and be glad in it."
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Joined: Jun 2008
Posts: 1,482
Silver_AS_Kicker
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Silver_AS_Kicker
Joined: Jun 2008
Posts: 1,482 |
That sounds about right. For me it was probably closer to the two week end of that window.
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Joined: Sep 2001
Posts: 2,192
Major_AS_Kicker
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Major_AS_Kicker
Joined: Sep 2001
Posts: 2,192 |
For me it took about a month before it kicked the AS. I was sleeping so much better, and I just felt really good. After about 7 months the MS started to kick in. I still had no pain, but I was dizzy all the time, and my right foot didn't hit correctly when I ran. Then I couldn't run at all. They sent me for a bunch of tests, and then said you have MS. That was the end of enbrel for me. I don't tell you that to scare you because the doctor told me that MS and enbrel are very rare. I just happen to be one that is built so that enbrel will bring out MS.
Steve Orchard, Running from AS & MS
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Joined: May 2008
Posts: 285
Third_Degree_AS_Kicker
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Third_Degree_AS_Kicker
Joined: May 2008
Posts: 285 |
Hi... I think I started to find a little relief by 4 weeks, but after 12 weeks it's really marked. I am feeling almost nothing in the low back/SI, except if pressure is applied. I do have a lot of stiffness though and my SED is still at 40?! I don't know if it will ever get down any lower?
Have others experienced a quieted SED rate after TNF treatment?
Dx'd AS (seronegative spondylarthopathy), Fibromyalgia 8/2007 Be happy for this moment... This moment is your life.   
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Joined: Jun 2008
Posts: 1,482
Silver_AS_Kicker
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Silver_AS_Kicker
Joined: Jun 2008
Posts: 1,482 |
Hell, I don't even know what an SED rate is?
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Joined: May 2008
Posts: 285
Third_Degree_AS_Kicker
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Third_Degree_AS_Kicker
Joined: May 2008
Posts: 285 |
AKA ESR (i believe). It's a blood test that measures inflammation in the body. It is not necessarily predictive of anything in particular but it seems to be a pretty hard to ignore red flag that something is amiss.
Once they figure it's arthritis it is one of the standard tests that are done. My lowest was 34 and hightest was like high 50s...
I notice you're from Canada and it is certainly possible that it's called something different there. Also this is just stuff I picked up along the way... Not like any doctor ever sat me down and gave the exhaustive run-down.... lol
Anyway I have a friend with AS whose SED rate is never elevated -- so its just curious really
Take care, Jess
Dx'd AS (seronegative spondylarthopathy), Fibromyalgia 8/2007 Be happy for this moment... This moment is your life.
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