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Oct 6th, 2025
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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: Aug 2008
Posts: 84
Apprentice_AS_Kicker
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OP
Apprentice_AS_Kicker
Joined: Aug 2008
Posts: 84 |
Hi everyone! I am new here, and I hail from Arizona, US. I am 43 yrs, f, and have AS. My sacroilitis is really flared and I am getting REALLY tired of the pain. I thought I would just vent to someone who knows what I am talking about...it actually seems to help! thanks!
"He will remove all of their sorrows, and there will be no more death or sorrow or crying or pain..." --Revelation 21:4
I can't wait!!!
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
just wanted to say a quick welcome,
sue
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Joined: Aug 2008
Posts: 84
Apprentice_AS_Kicker
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OP
Apprentice_AS_Kicker
Joined: Aug 2008
Posts: 84 |
Thanks Sue! it is good to be heard. Especially by people who understand...I am sooo excited to have this outlet and such a great place to get info, education and friends.
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Joined: Oct 2006
Posts: 2,001
Major_AS_Kicker
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Major_AS_Kicker
Joined: Oct 2006
Posts: 2,001 |
Welcome Azjenn! Pain is very tiring and after a while you just plain get sick of it. I'm glad you found us and you might be able to get some ideas for reducing the sacroilitis pain or managing it better. There is a wealth of good information out there among the folks at kickas.
Karen
I cannot make the universe obey me. I cannot make other people conform to my own whims and fancies. I cannot make even my own body obey me.
Thomas Merton
Hope is the thing with feathers that perches in the soul - and sings the tunes without the words - and never stops at all.
Emily Dickinson
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Joined: Sep 2002
Posts: 785
Magical_AS_Kicker
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Magical_AS_Kicker
Joined: Sep 2002
Posts: 785 |
Hi
Welcome to the group.
Just wanted to say I know how you feel at the moment.
I'm 3 weeks into a flare, (but coming out the other side of it now).
The non stop pain has been simply unbearable. Totally fed up with it.
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Joined: Apr 2008
Posts: 386
Fifth_Degree_AS_Kicker
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Fifth_Degree_AS_Kicker
Joined: Apr 2008
Posts: 386 |
Welcome! I'm fairly new too. And believe me I know how horribly tiring and annoying pain can get! And yes it may sound negative to some but venting sometimes REALLY helps! It helps to have others hear you, to be able to know exactly what you're feeling and not just say oh yes, sorry.
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Joined: Jan 2007
Posts: 2,188
Major_AS_Kicker
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Major_AS_Kicker
Joined: Jan 2007
Posts: 2,188 |
Hey, welcome aboard! Hopefully you're feeling a little better today?
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Joined: Mar 2002
Posts: 9,552 Likes: 10
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Joined: Mar 2002
Posts: 9,552 Likes: 10 |
Hi Jenn and welcome to Kickas!
I lived in Chandler, AZ for for 5 years, loved it there. I have moved around for work quite a bit, so have lived in many places that being one. There was a local support group there that met every other month, John Kornfeld was the leader, contact the local Arthritis Foundation in Central Phoenix if interested to see if they still meet.
Hope you can find some answers for the pain.
Tim
AS may win some battles, but I will win the war.
KONK - Keep ON Kicking
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Hi Jenn and welcome to KA!
Hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
Hey AZJenn! Welcome to the forum. I haven't been here a lot lately because of a flare and just now saw your post. Come back often so we can get acquainted. I love AZ. One of our daughters lived in Tucson for a few years and we fell in love with it. We probably would live there now if they hadn't all moved from OK East. Don't want to be further from the kids/grands. I am so sorry you are in so much pain and hope by now you have found some relief. Blessings. Possi 
![[Linked Image]](https://www.kickas.org/images/flowers/Smilingsun.gif) Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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