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| Forums33 Topics44,197 Posts519,915 Members14,169 |  | Most Online3,221Oct 6th, 2025
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Joined:  Mar 2010 Posts: 70 Active_Member |  
| OP   Active_Member Joined:  Mar 2010 Posts: 70 | 
Disclaimer: AS suspected but not confirmed yet
 Does anyone find they get a very stiff neck with their AS? Mostly it's my back that's painful but sometimes my neck and shoulders get very stiff and I seem to spend all day stretching to try and relieve it.
 
 Suffering back, joint and, heel pain and stiffness; tiredness and lack of energy; red and warm joints; much clicking and cracking of joints etc. for four years. Current DX: fibromyalgia
 
 Sometime music teacher and composer, PhD student
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Joined:  Jun 2010 Posts: 545 Veteran_AS_Kicker |  
|   Veteran_AS_Kicker Joined:  Jun 2010 Posts: 545 | 
Oh, yeah. AS attacks the whole spine. 
    Author: Mayan Solstice: A Novel of 2012 (http://www.createspace.com/3420054 ) If you would know a man, observe how he treats a cat.- from "The Door into Summer" (1957), chapter 1 (Robert Anson Heinlein) Love is the condition in which the happiness of another person is essential to your own. (again, RAH)
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Joined:  Jan 2008 Posts: 21,346 Likes: 2 Very_Addicted_to_AS_Kickin |  
|   Very_Addicted_to_AS_Kickin Joined:  Jan 2008 Posts: 21,346 Likes: 2 | 
my neck gets "stiff", the muscles are in spasm. stretching, heat, ice, muscle relaxant, and exercise (swimming or isometrics) to strengthen the muscles all are helpful, sleeping on a very flat feather pillow also help a lot as a preventative measure. 
 
 sue
 
 Spondyloarthropathy, HLAB27 negative
 Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
 LDN/zanaflex/flector patches over SI/ice
 vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
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 no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined:  Jun 2010 Posts: 3,865 Royal_AS_kicker |  
|   Royal_AS_kicker Joined:  Jun 2010 Posts: 3,865 | 
I second Sue's suggestions. Swimming, small flat pillow, isometrics, stretching...  My neck behaves pretty well if I stretch it the MINUTE I feel it stiffening up, or do some iso's if I'm in the middle of a bunch of people. Peace    
 ANA+ RF+ Rh- HLAB27+
 Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
 pulmonary edema w/ NSAIDS 2009
 
 Movin' it so I don't lose it!
 
 
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Joined:  Feb 2010 Posts: 2,190 Major_AS_Kicker |  
|   Major_AS_Kicker Joined:  Feb 2010 Posts: 2,190 | 
I get that stiff,tight neck and the muscles in between my shoulders want to bunch up in a wad. The only things that seem to help are hot showers, heating pads or a good massage. Donna
 
 Donna
 Cherish your yesterdays,
 Dream your tomorrows,
 But live your todays.
 Do the very best you can
 leave the rest to God.
 God Bless,
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Joined:  Jul 2010 Posts: 8 New_Member |  
|   New_Member Joined:  Jul 2010 Posts: 8 | 
oh yeah my neck bones have fused. top three the doc said. only thing that helps is streching exercises and heat. there are streches on this site somewhere cant remember though. look under
 helpful tips and go to the post helpful exercises. it really works for me.
 wish you well
 
 hurtin4certain
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Joined:  Nov 2008 Posts: 646 Master_Sergeant_AS_Kicker |  
|   Master_Sergeant_AS_Kicker Joined:  Nov 2008 Posts: 646 | 
Im beyond a stiff neck...neck is now fused and so is lower back....do all you can to prevent fusion........ i didnt untill it was too late..now a life time of disability.
 Fonzy
 
   Happy Trails To You Until We Meet Again
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Joined:  Jun 2010 Posts: 32 Member |  
|   Member Joined:  Jun 2010 Posts: 32 | 
I agree with the posters who advocate exercise to prevent fusion before it's too late.  I haven't snapped, crackled or popped in over three years.  Thanks to a resection osteotomy titanium moors my spine from s-1 to t-6, but over the past 15 years since the lumbar osteotomy my neck has fused, despite attempts to prevent it from doing so.  I no longer can turn my neck without turning my body.  I drive to work on roads where I'm either greeted by a stop signal, light, or height from which to see oncoming traffic both ways, otherwise I rely on my wife or colleagues to shuttle me about.  If I lived in a larger metropolitan area I doubt I could drive the limited amount that I do.  I hope your pain proves to be shortlived. |  |  |  
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Joined:  Nov 2001 Posts: 18,187 Likes: 7 Very_Addicted_to_AS_Kickin |  
|   Very_Addicted_to_AS_Kickin Joined:  Nov 2001 Posts: 18,187 Likes: 7 | 
Yup, my neck is bad, too. Left side in particular. 
 Stretching, range of motion, ice, heat (on the shoulder muscles to loosen their stranglehold on my neck), massage (shoulders again), walks where I let my arms swing loosely (shoulders again) and my anti-inflammatory salve are the only things that help. It's the one spot the biologics don't seem to touch, neither do NSAIDS. From a pain relief standpoint, the salve is the only thing that touches it.
 
 Hugs,
 
 Kat
 
 A life lived in fear is a life half lived.
 "Strictly Ballroom"
 
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Joined:  Mar 2010 Posts: 70 Active_Member |  
| OP   Active_Member Joined:  Mar 2010 Posts: 70 | 
Do people generally find that their AS symptoms vary on a daily basis or do they move in cycles? Last week it was mostly my neck and shoulders, but this week it seems to be back and ankles. The week before last it was ankles and heels! Mine seem to move around slowly from one place to another over a few days to a week. 
 Suffering back, joint and, heel pain and stiffness; tiredness and lack of energy; red and warm joints; much clicking and cracking of joints etc. for four years. Current DX: fibromyalgia
 
 Sometime music teacher and composer, PhD student
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