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Joined: Mar 2010
Posts: 70
Active_Member
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OP
Active_Member
Joined: Mar 2010
Posts: 70 |
Disclaimer: AS suspected but not confirmed yet
Does anyone find they get a very stiff neck with their AS? Mostly it's my back that's painful but sometimes my neck and shoulders get very stiff and I seem to spend all day stretching to try and relieve it.
Suffering back, joint and, heel pain and stiffness; tiredness and lack of energy; red and warm joints; much clicking and cracking of joints etc. for four years. Current DX: fibromyalgia
Sometime music teacher and composer, PhD student
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Joined: Jun 2010
Posts: 545
Veteran_AS_Kicker
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Veteran_AS_Kicker
Joined: Jun 2010
Posts: 545 |
Oh, yeah. AS attacks the whole spine.
 Author: Mayan Solstice: A Novel of 2012 ( http://www.createspace.com/3420054) If you would know a man, observe how he treats a cat.- from "The Door into Summer" (1957), chapter 1 (Robert Anson Heinlein) Love is the condition in which the happiness of another person is essential to your own. (again, RAH)
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
my neck gets "stiff", the muscles are in spasm. stretching, heat, ice, muscle relaxant, and exercise (swimming or isometrics) to strengthen the muscles all are helpful, sleeping on a very flat feather pillow also help a lot as a preventative measure.
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
I second Sue's suggestions. Swimming, small flat pillow, isometrics, stretching... My neck behaves pretty well if I stretch it the MINUTE I feel it stiffening up, or do some iso's if I'm in the middle of a bunch of people. Peace 
ANA+ RF+ Rh- HLAB27+ Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013 pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Feb 2010
Posts: 2,190
Major_AS_Kicker
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Major_AS_Kicker
Joined: Feb 2010
Posts: 2,190 |
I get that stiff,tight neck and the muscles in between my shoulders want to bunch up in a wad. The only things that seem to help are hot showers, heating pads or a good massage. Donna
Donna Cherish your yesterdays, Dream your tomorrows, But live your todays. Do the very best you can leave the rest to God. God Bless,
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Joined: Jul 2010
Posts: 8
New_Member
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New_Member
Joined: Jul 2010
Posts: 8 |
oh yeah my neck bones have fused. top three the doc said. only thing that helps is streching exercises and heat. there are streches on this site somewhere cant remember though. look under helpful tips and go to the post helpful exercises. it really works for me. wish you well
hurtin4certain
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Joined: Nov 2008
Posts: 646
Master_Sergeant_AS_Kicker
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Master_Sergeant_AS_Kicker
Joined: Nov 2008
Posts: 646 |
Im beyond a stiff neck...neck is now fused and so is lower back....do all you can to prevent fusion........ i didnt untill it was too late..now a life time of disability.
Fonzy
Happy Trails To You Until We Meet Again
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Joined: Jun 2010
Posts: 32
Member
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Member
Joined: Jun 2010
Posts: 32 |
I agree with the posters who advocate exercise to prevent fusion before it's too late. I haven't snapped, crackled or popped in over three years. Thanks to a resection osteotomy titanium moors my spine from s-1 to t-6, but over the past 15 years since the lumbar osteotomy my neck has fused, despite attempts to prevent it from doing so. I no longer can turn my neck without turning my body. I drive to work on roads where I'm either greeted by a stop signal, light, or height from which to see oncoming traffic both ways, otherwise I rely on my wife or colleagues to shuttle me about. If I lived in a larger metropolitan area I doubt I could drive the limited amount that I do. I hope your pain proves to be shortlived.
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Yup, my neck is bad, too. Left side in particular.
Stretching, range of motion, ice, heat (on the shoulder muscles to loosen their stranglehold on my neck), massage (shoulders again), walks where I let my arms swing loosely (shoulders again) and my anti-inflammatory salve are the only things that help. It's the one spot the biologics don't seem to touch, neither do NSAIDS. From a pain relief standpoint, the salve is the only thing that touches it.
Hugs,
Kat
A life lived in fear is a life half lived. "Strictly Ballroom"
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Joined: Mar 2010
Posts: 70
Active_Member
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OP
Active_Member
Joined: Mar 2010
Posts: 70 |
Do people generally find that their AS symptoms vary on a daily basis or do they move in cycles? Last week it was mostly my neck and shoulders, but this week it seems to be back and ankles. The week before last it was ankles and heels! Mine seem to move around slowly from one place to another over a few days to a week.
Suffering back, joint and, heel pain and stiffness; tiredness and lack of energy; red and warm joints; much clicking and cracking of joints etc. for four years. Current DX: fibromyalgia
Sometime music teacher and composer, PhD student
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