Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group ? Those w/fused SI joints

Oh you're quite tough (as all women are) and agree a bit of silliness is important!

Giddy glup gloopy nibby nabby noopy la la la lo lo
Sabba sibby sabba nooby abba nabba le le lo lo
Tooby ooby walla nooby abba nabba
Early morning singing song

After reading the various stories...not sure there is a textbook case. I thought mine was after initially not knowing anything about the disease and first hit with heel pain, costochondritis, eye issues. Later when a dr put it all together and I read up on it, I thought "textbook" case but it's so odd the order of symptoms seems to hit everyone differently and the actual rate of fusion evidence. What a confusicating disease!

Yep, plenty of other places hurt but have been less disabling than feet + si joints. After a couple decades of plantar fasciitis, the calcification at insertion points also now shows up on xray.

Yes Snowshoe, Voltaren Gel as well as Flector patches are all by prescription only. There are also the Lidoderm patches, also prescription. Your Dr. should be able to provide you with these. Maybe now that you are worst they will do a Rhizotomy on each side.

Jogging and how is the trampolining going?

Look for me @ Sochi Olympics....made U.S. Snow Angel Team (due to extensive training freezing SI joints)

Yep the prednisone works but have used it only on rare occasions...worst of the worst.

Thanks, going to read up on voltaren gel + flector patch. SI pain never goes away so maybe these will help.

Well I retired from the world championship bounceathon team. I was down more than I was up....So took up logging instead...........as easy as climbing trees..

I have voltaren gel, its really nice with the ultrasound (I was getting it done at the PT so frequently, I finally bought my own, and my husband uses it on either my SI joint or neck / upper back depending on what is flaring. Ultrasound is another thing I think I forgot to mention that is pretty noninvasive and pretty useful.

But if I just want to put an anti-inflammatory topical creme on, my compounding pharmacist told me about a mixture that he makes up upon some doctors prescription requests and so I get it. Its much stronger than voltaren. Its KIP: 10% Ketoprofen, 10% Ibuprofen, 2% Piroxicam. I tend to use it on my neck the most because its much harder to ultrasound my neck (gotta be careful around the spine).

But yeh, I guess I do a lot of topical stuff: voltaren, KIP, ultrasound, flector, and Ice….whatever it takes…..

prednisone.....
you may feel better if you were not so darn onery!
sometimes nothing helps....

why don't you dust off the cross country ski= and ski all the way to Gillette, you would feel good about the trip!