i think you all posted while i was between starting mine and getting interupted and finishing mine.

deanne, i think i need new doctors, i have SI, hip, butt, rib, hand, feet, knee problems (not as bad as it sounds, as PT and physiatry have helped me get things under control), but none of the doctors i've ever seen have really ever shown any real concern with any of this. but now i think i am getting to a point where i can build a strong enough case and find a rheumatologist.

because i think you and i feel the same way, that iff we can prevent further damage, we want to be proactive. i've been trying to be proactive for 10 years and i think (but don't know for sure) that at least by getting each injury semi-healed up and trying to keep my muscles strong, i'm helping my body at least just a little.

sue


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)