ive read a little about secondary amyloidosis megan (im sure you've scoured the internet by now).
what ive found suggests that in AS it occurs in 7-10% of patients, usually with sever and long-lasting disease, though it has been described in patients with severe but short disease duration. of those 7-10% only half become symptomatic in the short term (protienuria etc). one older piece of literature described the prevalence of amyloidosis in AS patients at autopsy as high as 20%!
i guess you'll be getting your pee tested for protien, and possibly and abdominal fat pad biopsy? i think some docs test for serum amyloid A in the blood too, but im not sure how that level correlates to actual disease as the SAA level is elevated in most AS patients with active disease.
there are case resports of patient having their amyloid disease regress with tnf-alpha treatment.
