sorry megan, not really familiar at all other than recognizing the name.
hope that with a diagnosis may come treatment?
can they definitively diagnosis / see it?
how would it be treated?
or are you still in the researching stage.
in any case, just wanted to send
and hopes that its not too serious,


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)