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Joined: Apr 2002
Posts: 3,607
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OP
Joined: Apr 2002
Posts: 3,607 |
Quote:
there are case resports of patient having their amyloid disease regress with tnf-alpha treatment.
... and the neuropathy started, and the nausea got really bad 3 months after I stopped taking enbrel. This was another one of the factors that led my doc to think amy. But I only stopped taking enbrel because a) it seemed to be decreasing in efficacy, and b) NSD was working well. Sure hope I didn't inadvertently do this to myself.
The doc is doing more bloodwork now, probably to rule out more things. The first round of bloodwork didn't show one single abnormality. I really, really want it to be something else, something simple.
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