Hey Meggie, I'm so sorry to hear that you have yet another thing to deal with. Good grief, it's so damned unfair.
Did a quick read on the Mayo Clinic site and the Amyloidosis Foundation website. I have a lot of those symptoms, too. Kind of made me think, you know? I noticed that secondary Amyloidosis tends to resolve if the underlying infection or inflammation is dealt with. That this started after you came off the Enbrel could be the biggest clue.
And don't you dare try to blame yourself for this, or beat yourself up for needing Glen or your mom! If you need help, you need help. End of story. It's really too bad that Glen's work is taking so much of him right now. Since that's where he needs to be, there isn't much you can do about it. But I ask you, what would he have said in, say, a year if you told him you'd needed him but hadn't wanted to bother him when he was so busy. If he's anywhere near to loving you as much as I think he does, he would give you a hard time for not calling him. Yes?
Please know I'm pulling for you and I truly hope that, well, I don't quite know what to hope. I don't want you to have a dx of this because that would just be too awful. But I don't want you to go without a dx on these symptoms any longer, because it obviously needs treatment. So, I'll just leave it at I'm hoping for the best for you in this.
Warm hugs,
