Oh Megan, I really hope it doesn't turn out that you have this, even secondary it does not sound pleasant.

I will keep my fingers crossed that they discover it is something simpler and much easier to treat. This nausea and vomiting has gone on way too long! I don't know how you are coping so well, I'm sure I would be absolutely miserable with those nasty symptoms.
As far as I know, I don't have amyloidosis and I
think some of my lab work is checked for such stuff occasionally. I am surprised it's been so long since you've had a urine test, I thought these were fairly standard with many meds? Err maybe it's because I've always been on ssz. Anyway, I hope with all this new testing, they will soon figure this out for you Megan!
Huge hugs!

mig