Big hugs for this. You have to try to shake off their ignorance, live your life and take care of your kids. You will manage this because you are one of the strongest people here. Keep on plugging along. You can do it.
I'm not sure myself of what my mom understands about it, but she will understand more when we take a cruise together this fall. She sort of understands, but not completely, because she has been healthier than me for the last 10 yrs. And my husband alternates between being thoughtful and kind and wishing he could take my pain on him (really said that! Sweetie!), then makes an offhand comment that I'm 'munchausening myself' if I share news from the internet about whatever ails me. Fortunately, that is a rarity. But I don't share all the tidbits I read on here or in general, health-wise.
So keep on going, you'll make it...in YOUR style, not theirs.
