i've had this since 1998, no evidence of fusing, just arthritic changes and bone spurs. I suspect that will be true for me for the future as well.

Never heard of a relative discuss fusing, just all the other stuff.....

But I've been dx'ed undiff spondy, mostly due to lack of fusing,

and the fact that I have the joint inflammation, and the GI inflammation, and a little psoriasis now and then, and other more generic "autoimmune" symptoms like dry eyes, mouth sores, and fatigue when I flare.

I'm also HLA-B27 negative. But do wonder if I have one of the other genes discussed on here....when those tests become readily available, would be interesting to get tested. Though really just for curiosity, because my doctors are treating the inflammatory disease and the symptoms and not worry so much about genes, blood markers, or even radiology reports. But took as Molly said, a dozen years to get to that point. Just gotta find the right doctors.


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)